...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Friday, October 2, 2009

Progress

For the last 2 weeks I've been having an NST every Tuesday and Friday. Baby Boy's heart looks good. I had to do yet another 24 hour pee test too. My butt hurts, my legs are like tree stumps and I have zero energy. My tailbone hurts so bad that I've taken to hoisting myself to standing with my arms and have made the dread mistake of sitting in the the armless chairs at the dining room table. To sit I reverse the process, much like a harbor crane gently settling a 40 ton cargo container onto a barge at the docks. I don't know if I'm the cargo container or the barge.

I have completely given up The Battles of the Underwear War and have settled yet again for the next larger size of panties. They still leave dents in my belly from all the fluid, and they still cut off circulation to my legs, especially the right leg, but they are at least tolerable. For now. I picked up some last minute things for the diaper bag and bought a small fridge for our bedroom. I'll ask Miss Susie to move our spare microwave in there tomorrow. When I was nursing The Middle I was starving all the time. And since The Middle ate every two hours, The Beloved took to sleeping in the living room until I'd stopped nursing The Middle.

The purpose of his sojourn to the living room was supposed to be getting some sleep without getting disturbed by The Middle every two hours. The real result was that he'd still gotten disturbed by his wailing. Not only was our first home poorly insulated, but it was small. Sound travelled. You would have to leave our house and enter the neighbors house across the street in order to not hear everything in our house. The Middle always awoke just knowing he was in the process of starving and always issued a suitably shrill and loud wail of alarm with his first waking breath. Waaaa-aaa-aa! The Beloved was just about getting back to sleep when The Middle expressed his displeasure at being burped, along with more shrill wailing and sounding of alarms. And then sleep at last...only to be once again awakened by The Milk Cow trying to quietly sneak past his not sleeping form to get into to the kitchen to forage for something to eat. Anything. I was starving all the time while I nursed The Middle. I clearly remember watching the microwave count down so I could shut it off before it dinged. I also remember eating less than hot whatever just so I didn't have to take the chance on the microwave dinging again. And I'd still have to sneak back through the living room before The Middle made any noise. So...this time I will have my own neatly contained survival chamber in our bedroom...TV, fridge, microwave, food, telephone, bathroom...down the hall, across the living room, and down the long hall away from The Beloved who will be sleeping soundly in the front room. We hope!

And speaking of the front room, it only needs to have a table moved out of the way and it will finally be finished. Ready for a Christmas tree. All the clutter cleared away and a space once again large enough to hold a fully decorated tree and the two Littles in a mad frenzy of torn wrapping! The only thing in there now are several bags of The Littles outgrown clothes. I finally shopped for the kids winter clothes and got all of their too small clothes out of their closets and drawers this past week. I'll call the donation center tomorrow to have them picked up. I'd thought about saving The Middles clothes for The Newest, but then I reconsidered. There was the 7 year gap for one, and the now entirely depleted storage space in the garage for another. No, I'll just buy new.

So all of our big tasks are completed. All we have to do now is stay pregnant a little longer until The Ducky can be born safely.

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