...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album

And I'm singing Aaa-ayyy-men, I'm alive!

William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.

"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"

Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10

Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5

For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14

Monday March 5th, 2010

So Why Stinkerie?

It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."

Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!

Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!

Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water

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Friday, December 31, 2010

Happy New Year!

Jack rang in the New Year in a diaper...
Here he is celebrating with his bad self by trying and succeeding to wrestle those rascally toes into his mouth!Gotta have a cheesy grin in the mix!And for the record...

This outfit STILL fits!

Maybe he will outgrow it next year!

Thursday, December 30, 2010

Oh, Yeah!

It's a picture palooza...because we have a sitter! Yeah!

Leaning forward to turn the pages......and then back upright on his own!Jack sat with Anna, his EI gal, for at least six minutes before falling over! Most times he was able to correct his own posture and stay upright, even leaning forward to turn pages and then sit back up tall! His first sit was the longest, but he had several more three minutes sits before falling all the way over! Yeah Jack!

Wednesday, December 29, 2010

Sunday, December 26, 2010

Thank You!

A very heartfelt Thank You to Grandparents near and far, to Grammie and Grandpa in Idaho, to Great Grandma Ross in the valley, to Grandma Emmie and Grandpa D who live nearby, and to The Other Mommy, for the love they've shown us this Christmas. And a very big Thank You to Laurie, Jack's vision therapist, and The Junior Blind of America. All of your generosity has made a wonderful Christmas for Our Littles! When we began this adventure, I'd had no idea that Jack would need or benefit from the Junior Blind of America. When Laurie made her visit the Wednesday before Christmas, my heart was warmed by the thoughtfulness of gifting all three of our children with awesome toys. I was quite literally moved to tears by their generous family gift of a huge Target gift card. Next year we hope to be one of the families donating instead of receiving. But for this year, to all of you have been so very generous to us, please know that your love and kindness has been a true blessing! Merry Christmas everyone!

We're all hoping for a prosperous New Year!

Friday, December 24, 2010

New Pictures

Okay, so I've had yet another night with no work, and therefor, no sleep. So, I posted pictures, going back as far as December 15th! Go look, but be sure to read Ding Dang Ol' Baby!

Thursday, December 23, 2010

Ding Dang Ol' Baby

The Dear Daddy, much to my chagrin, has taken to calling The Littlest Baby Boomhauer. It doesn't help when Jack lets out of rapid and happy stream of "Bbbbrrrrpppp, bbbrrrrppp, brrrrrrrinnnng! Brrrrring, plurrrrrb, plurrrrb, brrrrriiiiip, bleeeeeh, pleeeeeh, pleeeeeeh!" Because The Dear Daddy just points to him with a stupid grin on his bobble headed face and says, "Baby Boomhauer!" with complete conviction. Crap!

And Then He Kissed Me!!!!

I almost forgot this! Last Friday, December 17th, Jack and I were in Target using a gift card we'd received. He was too cute sitting in his seat, and as I often do, I leaned in for a smooch! Now I'm not going to say that he puckered, and he did not make a kissy sound, but he did put his lips together and then let out a "puh" as I kissed him. So...just to be sure, I waited a minute or two and did it again...again with the lips together, and as I kissed him he went "puh!" I call that a kiss!

I was so delighted I asked him Was that your first ever kiss for Mommy?! A very, very tall older man walked by grinning, looking every bit like an African American Santa, but without the beard, and saying "Now there's the good in life, isn't it? Kisses from a little baby! Yep! That's the good in life!" That's the first time he's ever done that! I say jubilantly! "All the more sweeter" he says. It was so cool that a perfect stranger shared my delight in the moment! That's the good in life!

Wednesday, December 22, 2010

Another Night, No Work

So I promise to post pictures instead! Tonight! I recommend scrolling down to Head Stands.

Random Sweetness


Santa visited at the Baby Steps Christmas party this week, where we go for Jack's Baby Class. Do please notice how tall he's sitting!

Jack was rather happy to sit on Santa's lap and pull on his beard ~ went right to the beard pulling before he had even looked to see who the beard belonged to!
"Santa! I'd really like to have some top teeth for Christmas. This Mr Magoo look isn't working for me anymore!"
"Mom! Santa says that I'll grow some top teeth! He says I should use my Santa wish for a toy!"
"Are there toys under the tree?"
It wasn't long before Jack settled right in, cuddling up for a nice long comfy snuggle in Santa's lap!

Tuesday, December 21, 2010

A Very Bad Mother

My Children are a little annoyed with me because I am insisting that they watch two Baby Signing Times every day during Christmas vacation. I was going to make them watch only one, however since they were at The Other Mommy's house over night on Monday, they owe me one and then there's the one for today. This evening I popped in the first one they'd already watched on Sunday, when I started this idea, just for review. It was very clear that they'd retained little. Who woulda thunk it? I mean seriously, I watched the two starter videos (which they are now learning) and totally got it after one viewing! Or twelve! Okay, probably more like twenty viewings, but at least by the twentieth viewing, I had some pretty good recall! So, the plan is to watch which ever disc they watched the day before, and then a new one. Every day while they are on vacation! So there!

Now that Willie is starting to sign just a teeny bit, I am signing everything I can think of to him, just as part of my normal conversation and going about of daily activities. And now that The Dear Daddy sees him signing Daddy, he's got his pinky toe enthusiastically on board with 'this signing thing you're doing.' My hope is that as Our Olders incorporate more signs into their daily speech with Willie, The Dearly Beloved will find more innate value in learning some signs as well. And I could be just smoking a crack pipe...but we're trying! Wish us luck!

Head Stands

Starting Position: Left hand off the floor...
Right hand off the floor...
The kid can't crawl, but this he can do! Head stands with his arms tucked to his chest...WHY? I blame his Father because he's forever giving in to Jack's love of being upside down.
And here's The Face!

Monday, December 20, 2010


So The Dearly Beloved is working over night, The Olders are both at the Other Mommy's house for a sleep over and they're all going to see Tangled tomorrow, so it's just Willie and I at home tonight. The Olders are out of school for 25 straight days. TWENTY FIVE days people. They got out Friday and by Sunday they were driving The Beloved and I batsh*t with their bickering. And today I am free of them! I took Willie and I out shopping in the pouring rain, just because I could get out without the gaggling goobers in tow, trying to kill each other from the front door, in the van, in the store, wherever we wound up next and back home to the front door again. I even took Willie and I out to a sit down dinner in a fancy restaurant that no one else likes but me. The meal was sumptuous and Willie was the perfect gentlemanly dinner companion. I'd had this gift card from Carinos for a few months...but I'm the only one who likes their food! And I'm so blue and lonely that I'm sitting here crying over stupid sentimental movies and scooping up Kleenex to shovel away the snot running down my face. What is wrong with this picture?

My plan is to complete yet another step in the process of taking back our bedroom from all the crap that winds up in there when company comes or when there's simply no where else to put it, (Remember I lost our spare room late last year!) and then sort out and The Little's gifts to make sure there's a fairly equal, or at least in obvious but unequal, distribution between wrapped-under-the-tree and stocking presents from Santa between the two Olders. I'd planned on giving Willie a Baby Einstein around the world discovery center for his big Santa gift...until I realized that The Middle was with me when I bought it, and if I actually put it out from Santa, the jig will be up. I'm not ready for them to lose that magic. It's such a sacred part of childhood. So...plan B. Very few of Willie's gifts will be wrapped under the tree. Ummmm, First off, we're just going to have to unwrap them anyway. B.) He loves to eat wrapping paper, and 3.) I have no #3, Okay, I just wanted to make your eyeballs stumble over mixing up my list points because I can't figure out how to do bullet points. Humor me. I'm sad and lonely and have snot running down my face from crying like a baby.

Where was I going with this? Oh yeah, as soon as Pillie-Pie wakes up I'm going to vacuum our bedroom. Then I'm going to scrape off the dining room table. Then I'm going to haul out what little loot I've managed to stash away in at least three, no five, places throughout the house and sort the goodies. If the table hasn't realized that it's now free and run off somewhere, I'll start wrapping gifts! That will cheer me up! I have an unbeatable system for wrapping gifts. All of The Girlie's gifts are in double sided purple/pink (Christmas) wrapping paper. All of The Pod's are in double sided blue. Willie's are in double sided red. Those huge 90 pound rolls you get at Costco! We're color coded. No tags to fall off, thereby eliminating the gift mix up! And I'm pretty sure those rolls will last until they are all in college! No kidding...they're huge 90 pound rolls!

So thanks for listening to me whine. I'm better now!

Or we could just go directly to plan C, which would include Jack waking with a whimpering cry and a fever of 103.2! Off to the ER. I gave him some ibuprofen and we left home with Jack naked save for a diaper in his car seat at 2:00 am. The ER was mercifully empty tonight and we left there at 4:08 am, with a temp of 98.0 and Jack once again wearing clothing, with antibiotics and a diagnosis of a viral upper respiratory infection, ears and throat fine, antibiotics for prophylaxis due to his cardiac issues! Which only proves once again that our ER, for now at least, does not suck. The doc who treated Jack was looking at me as if we'd been neighbors at some point in our lives. I informed her that my daughter was treated by her recently and she said excitedly "Oh! The basketball! How is she?" Points for her that she remembered! And for the record, in case you're wondering...Jack isn't sick because we were out in the cold. Colds and flu are not caused by being cold, washing your hair and going out, or going to bed with wet hair. They are caused by bacteria and viruses...things you are likely to catch indoors in warm environs. I'm just sayin'...

Post Script Thursday, December 23rd: The Girlie busted into our bedroom, in a panic, this evening asking, "Mom? Can babies...well...are babies...able to be bad? Can babies be bad? Is that possible? They can't, can they?" This serious concern was delivered complete with a serious face, furrowed brow, forward posture and many gesticulations while she tried to convey her worry in words. No, I tell her, I don't think that babies can be bad. Why? "Well, we have a problem then!" clearly she's upset, all but shouting at me, with more arm flapping to emphasize the enormity of the problem. "William only has three presents! Me and $&%@# have five each! Under the tree! Go look! I don't understand why, if babies can't be bad. Why doesn't William has as many presents as me and $&%@# do?" So I tell her simply that we have so little money this year to buy presents, and that Willie just had a birthday a month ago and got tons of presents. She is not satisfied with this explanation and suggests that maybe I should take back one of her presents and buy something for her baby brother. Aaaaawwww! and Dang it! In a flash of brilliance, if I do say so myself, I tell her to go check and see who has the biggest present...from the front room, hollered all the way across the house..."Mom! Are William's presents wrapped in the red paper?" Yes I say in a normal speaking voice because the baby monitor is right where she's standing. "The biggest present is wrapped in red! Is that William's?" Yes, I say into the monitor again. So once back in our bedroom, she informs me again that William has the biggest present. Well, that kinda makes up for having fewer, doesn't it? She's still unsure so I insist that William is young and that he won't know or care that he got fewer gifts than his siblings. And then she had to say it. "Well, maybe Santa's planning on bringing him something really special!" and off she goes, happy as can be. Dang it! Santa most certainly is not going to leave some whopping gift in Jack's stocking. The coffers are empty! In fact, I had to sell the coffers on eBay to buy dog food! Danged kid. She has a huge heart. Volunteered to have one of her presents returned to provide more for her baby brother. Hopefully, she'll be too enrapt Christmas morning to notice that Santa didn't leave Jack a puppy or a pony. My Girlie rocks!

Go Win Yourself an iPad!

Actually, I want to win the iPad, but if you go and donate to these two little girls' adoption funds in the UK, they will be the real winners! Hop on over to Patti's blog about her beautiful daughter Lily and enter your chances to win! While you're there, follow the links and you might just find a child on Reece's Rainbow that steals your heart and moves you to bring a baby home yourself!

Oreo Cookies!

As is so often the case these days I have a lot of trouble sleeping. Call it stress. When The Dear Daddy is away, The Girlie sleeps in my bed...as long as I'm there with her. If not, she won't sleep either. So...we put my stress and worry into something more productive than tossing and turning. We got up at 1:00 am for cookies and milk. Since Jack is also a night owl, and was busily making baby noises from his cradle, we scooped him up and stuffed him into his high chair for his first ever Oreo cookie!
LOVE this picture!

Very little cookie was actually consumed...pretty much just one little chocolate smear on his tongue...but he sure had fun with it!

Sunday, December 19, 2010

The Big Red Bow

Tried to get "One Year Later" pictures with the big red bow!
Only...not so much. Jack was so happy to be rolling around naked, there was no way he was going to hold still, all curled up innocent and sweet like...
So these are the few I managed to get that aren't X~rated!