...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Monday, June 13, 2011

Scrawny Ronnie

Jack finally weighs exactly 22 pounds! Yeah! I am quite certain that Katee, the nurse extraordinaire, is entirely responsible for this feat! She rocks!

He can also, thanks to Katee, "Rub your tummy, rub your tummy!"
He can't quite "Pat your head! Pat your head!"
But he can "Now let's find your nose! Now lets find your nose!"
All of which is amazingly adorable! Especially if you hum along to the old classic nursery rhyme Where is Thumbo, as it's intended!

The Dearly Beloved and I were worried to be pregnant again at our late ages, and you already know how distressing a Ds diagnosis is, but I swear on all that is sacred, I thank My God in Heaven every single day for this child.

Jim Bob Duggar once said that God gives us exactly what we want, even when we didn't know to ask for it.  I believe he was exactly right!

Since my Little Butter Ball has finally gained adequate weight, he has graduated out of the infant seat and into the big boy seat I bought way back in May before he started losing weight! Katee and I installed the seat to the accompaniment of much heckling from the Dear Daddy. Of course it's easy for him to heckle and harangue ~ he's never been the one to assemble the carseat/stroller combos, swings, bouncers or any of the other stuff that comes along with babies. He has built each baby's crib, if you count correcting the botched job the kids and I did on Jack's loaner crib. And he has faithfully been the one to lower their mattresses at each juncture of their development. I suppose the heckling did lighten the mood when Katee and I were looking to each other to know what to do with poorly illustrated diagrams. It's not as if we're both college educated ~ oh, wait. We are!
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1 comment:

Jen Currier said...

woo woo! 22 lbs!! I've fallen behind in catching up on those I adore. Willie is, of course, at the top of that list! Congrats also on the losing of the old job and the hiring at the new one- I hope it is a "good fit". ((hugs))

June 26, 2011 at 9:41 PM

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