...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Saturday, September 5, 2009

27 Weeks, Closets, Baby Gear

Tomorrow starts my 27th week. This is officially the last day of my second trimester and I'll start the third tomorrow! I'm still trying to adjust to the fact that I'm pregnant and now I realize that Baby Dear will be here before I know it. In my arms at last. It's also my Dearly Missed Mother's birthday. She would would have been, should have been, 77 years old. I miss her terribly, but I'd like to think she'd be happy with the life I have, with my career, with My Beloved, with the Littles, and I know she'd be supportive with The Newest. Dang, we need to name this kid! We have discussed the name Kenneth. The Girlie hates it - vetoed it immediately. The Middle is still pushing for a name one letter away from his. I vetoed that for obvious reasons! I already get their names confused as it is, and I often have to resort to "You! The one I'm yelling at!" And while The Beloved and I liked the name Kenneth in the evening, by morning he wasn't so sure anymore, and I have to admit that after kicking the name around a bit, I am not so keen on it anymore either.

Miss Susie helped me hang the brackets in the nursery closet. And then we installed the closet bar. That turned out to be another hammer-whacked-knuckle, freshly-applied-paint scraping event laced with much cussing. Again, on my part. But I did manage to avoid injuring Miss Susie with anything this time. The girl knows how to duck and she learns fast! Then we removed the closet bar when I realized it would have to come out in order to install the shelf above the closet bar. And that was accomplished with more knuckle whacking, paint scraping and requisite cussing. And then we re-installed the closet bar. And we put in a shelf about 3' from the closet floor to eventually hold bins of toys on top and below. We'd already figured out how to best install the shelf based on the aforementioned shelf. But this time it was only three feet off the floor and the shelf had to be clipped into the brackets from underneath. There is no comfortable position to either bend or squat when your midsection is the size of Jupiter and your butt is the size of - well, let's not go there. My girth prevented being able to hold the shelf because both the shelf and I would not fit in that closet, even with the doors removed and still be able to hold the shelf flat. So, Susie held from above while I crab-crawled on my side, absolutely unable to lay on my back and still be able to breath, to clip the shelf into the bracket. When we were finally finished we stood back to admire our handy work. I'm pretty sure I heard Miss Susie mutter an expletive under her breath. Okay, so she said it out loud. I've been a bad influence on her.

While The Middle napped, we left Miss Susie in charge and My Girlie and I went out to buy baby gear. I thought it would be a good to celebrate my Mother's birthday by doing something fun with My Own Girlie because I know she would have loved her so much. We had to go to several different stores, but we found the Winnie the Pooh swing at one store and the matching car seat/stroller combo at another. Then we went to yet another to buy a matching bouncy seat with a gift card we'd received from neighbors! It was tiring driving all over town, but it was a fun trip and it was nice to spend some time with just The Girlie and I. She was especially delighted when I headed toward the baby clothing section. I have the oddest feeling that I just can't get over. I keep thinking we will miss our baby shower. So...we'd better have some clothing! Between the two of us we picked out 9 sleepers and outfits and another pack of tiny white socks! My Little Girlie was thrilled to be part of the baby clothes selection process!

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