...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album

And I'm singing Aaa-ayyy-men, I'm alive!

William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.

"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"

Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10

Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5

For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14

Monday March 5th, 2010

So Why Stinkerie?

It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."

Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!

Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!

Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water

MusicPlaylistView Profile
Create a playlist at MixPod.com

Sunday, September 6, 2009

Bad Dreams

With so much tumbling around in my head, I don't know where to begin! Keep reading and you may contact the local authorities in my area to send over the men in the little white suits! I had a nasty dream a few days ago. I'm used to the very odd and bizarre dreams of pregnancy, but this was over the top, and I think it was rather telling. The kids and I were at a BBQ somewhere. All three kids. Jack was a platinum blonde toddler - no I did NOT get to see his face! There was a little blonde girl about six years old, and an old man, and they were yelling at Jack. The old man was a morph between one friend's dad and another friend's dad. They were yelling "Sit!" to Jack and pointing to the dirt ground like you'd do to an errant dog you hated. Everyone turned to stare. There was such hatred and venom in the little girl and the old man. I reared up into my mother bear and stormed the man, backing him into a wall. I demanded to know was he going to play nice and treat ALL of my children like human beings, not animals. I was acutely aware of the fear rolling off of Jack and a scared mewing sound coming from him. The Girlie and My Boy-O surrounded him in their arms. The old man was scared and backing away from me but I stayed with him, towering over him. In what can only be the wonderful magic of dream graphics, his thin wispy hair was flowing over his balding head and his jowly cheeks were flapping in the wind caused by the force of my words! Neither of my friends dads are bald, but there it is. I woke up after demanding "Answer me old man!" Quite a nasty dream, straight out of the "Pit of Fears." I think the old man was a morph between my friends dad's because in real life, if you make eye contact with either of them, you are filled with loathing and horror and go take a long hot shower in a hopeless attempt to feel clean again. Okay, so that's dramatic, but they both have still, cold, dead, reptilian eyes. Shudder. I was glad to wake from that nightmare.

No comments: