I was too afraid.
What I remember is being scared...of so many things. Mostly that this baby would follow Hannah to Heaven before we got to know him or her. That as each week passed and the baby was still fine, I'd come to feel secure only to have it end again so suddenly. That the baby would have chromosomal abnormalities. That the thing I feared so deeply, the thing that I already knew deep in my soul, would eventually be spoken out loud, that the fear would become words and the words a reality, and the reality our baby. I was so afraid of losing this baby, in whichever form loss was to take.
However, I have a different perspective now, having survived what can only be described as a hellish physically tortured pregnancy, and don't even get me started on the emotions. If you're here as a fellow Mom to a baby with extra chromosomes, you already know the torment of the unknown. If you're here because you've just gotten the news about that little extra bit of DNA, again, you are living the torment and fear and I don't need to tell you! But what you might need to know, what someone does need to tell all of you Ladies in Waiting, I am quite certain that the angels in Heaven did indeed sing while Will took his first breaths!
I am so, so very sorry that I ever cried tears that Will would have Down syndrome. Of course I needed to do that, and it was a natural process. It was necessary to go through all of that hurt, anger, sadness, disappointment. That outright despair. It was cleansing. And what it left was fear. Terror. After all, we'd gotten tragic news. At this late stage of our lives we were anticipating a child with major health issues. Surgeries. Therapies. Disabilities. Differences. Everyone expressed such sorrow. Such regret. What were we to do, they asked. Our lives would never be the same, they said. But from where I sit now, watching my sweet little darling boy sitting upright in his swing to grab at toys...well I wish I could have fast forwarded to just one moment of this Mother's Day.
To get just a glimpse of this darling, happy, healthy and delightful little baby. To see how normal our lives still are. And how mundane unloading the dishwasher still is. And how I still despise dusting. And folding the ginormous load of white clothes still makes me cringe. And the happy smile I still get when my Middle Little hops off the bus bouncing. Of how I still feel complete when My Girlie arrives from her bus, twenty minutes after The Middle. Of how The Dear Daddy's arrival home is still one of the best parts of the day. Of how the roses in the front yard still bloom just as red. Of how declarations of love from My Middle Little are still so sincere. There are some things that are different ever since Will. We have a few more doctors appointments and we have various services like OT, PT, EI and SLP. The major things that have changed in our lives are quite significant. For instance...
...I start my days with a tiny being cooing in the cradle next to me. My Girlie gets a live baby doll to play with. Both of My Olders get to have and take pride in some small amount of responsibility for someone smaller than themselves. The Dear Daddy has another Little to look forward to at the end of the day. We all have this new little life to celebrate and enjoy so very much. The Littles spend their weekends with their ears perked for the first sign that Will is waking from a nap. The Dear Daddy does not...he just goes and picks him up even if he's asleep, and then pesters him until he's awake enough to play! There's a little less room in the cargo hatch because a stroller now occupies that space. Soon we will take down a baby swing and then add a high chair to the dining room. And while it's all so very normal, so common place with a new baby in the house, it is singularly extraordinary as well. It is phenomenal. It is inordinate. And it's ours. All ours. Ever since Will.
And now there is One More Little to add to the Pile o' Puppies...
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