...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Sunday, February 20, 2011

Jack's Been Up To No Good!

First he figured out how to expand his horizons with a trip down the hall......to pick out a movie...

After that he ventured into the kitchen all the way on the other side of the house...

...to see what mischief he could find...
...under the table...
And this is his newest trick...
...and he's tickled pink to have outgrown his cradle...
...can you see how pleased he is with himself?
And his new kneeling skills have led to this...
...time to teach him how to fold!
And teach him to stay out of the CD's...

...and to NOT pull on the telephone cord... ...cuz it only leads to this...
It didn't actually fall on him...but the loud noise when it crashed convinced him that he was dreadfully injured.
Of course there's always room to explore under the coffee table...

...and what would the day be without kneeling at the step stool?

That top left tooth I spotted the other night is here to stay...not the here now, gone tomorrow second bottom tooth that's been playing shy for months now. So, Jack-Snack officially has four teeth! The top two look to be like normally shaped teeth. The bottom right tooth has finally made it's debut permanent, and it's every bit as unique as it's neighbor, a sharp spikey pointed fang. That the bottom teeth are spikey is no longer much of a wrench to the head. I'm over it. He's my little Jack, and his teeth are spikey.

Friday was his 15 month well baby check. And a new diagnosis of asthma. So he has yet another inhaler, this one an inhaled steroid called Q-Var, 1 puff every morning and one puff every night. Dang. Jack weighed in at 20 pounds and 14 ounces. He is 28 inches long! His head circumference is 45 cm. He's still wearing a size 4 diaper and his crawling skills are getting more uniform...not quite a genuine crawl, but the boy gets where he wants to go, all the same! And Saturday I bought him 7 new sleep and play outfits...size 6-9 months. He's barely hanging onto the regular growth charts at the 1st percentile for height, but he's moved up 2 points and is in the 5th percentile for weight! You go baby! I love you so much it hurts, but in a good way!

Post Script: I also discovered late after this post that Jack has the outer point of a molar poked through his top right gums, way in the back, but I was too lazy to get up and update the post. He's had wide mushy back gums, top and bottom, for about two weeks now, so I wasn't really surprised to find that little point sticking out. It was still poked out when I got home from work tonight, so I guess it's officially a new tooth coming in!

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