...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Tuesday, July 12, 2011

Letting Go...

A few nights ago, Jack was standing next to Princess' kennel having one of his nightly holler-fests with her. She licks his fingers and when she stops, he hollers at her to do it again. Suddenly he let go. He stood for all of 3 seconds before plopping down on his butt. I tried to photo-document the event, but with Jack down, Princess laid down and they had a staring contest instead.

Despite the fact that I absolutely forbade Stoopid Katee* from telling me any new thing he does until I've already told her that he's done it for me, she reported last week that she let go of his hands and he stayed upright for a few seconds in a standing position.

Other fun stuff he's taken to doing is pushing the dining room chairs across the floor and walking behind them full speed, sometimes faster than his little legs can carry him, and he's all but running around furniture now, instead of cruising. Some not-so-fun stuff: his Father allows him to crawl from the couch to sit on top of Bailey's kennel and sit up there like he's king o' the kennel. What? Really? Who is this man? It amazes what what Jack gets away with doing around his Dear Daddy. The bathroom door is always closed now. He has not discovered the lid to the toity raises, but he has figured out to use the brute strength of his arms along with the traction of bare toes to skinny up the side of the bathtub, over and in...head first. He's narrowly escaped injury only because he's only allowed in the bathroom when someone is there to prevent a topple. We're aiming for walking by two. I keep hearing how much trouble he'll get into then, but really, the boy gets into tons of trouble now!

There are so many moments in our children's lives that make us burst with pride. Who knew some of the biggest would be so simple. I asked Jack, "Where's your nose?" and he poked his own nose several times hard enough to smoosh the tip down. Katee taught him that! Then I asked Jack, "Where's Mommy's nose?" He lunged forward and sank all five sharp little nails into the tip of my nose! Yep, he actually made me bleed, but he found my nose!!

*We love you, Katee!

1 comment:

Becca said...

Oh dear, you've got a climber!! Sammi never climbed anything, which was both a concern and a relief to us. Now we're comfortable that she *can* and grateful that she *didn't.* LOL Sounds like Jack is loving exploring his world!