...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Thursday, July 14, 2011

Well then...

July 8th came and went this year without any notice until days later...

It was an after thought this year, that date that seemed to have such profound significance just one year ago. Jack, you've come a long way, baby...and so have your Mommy and Daddy.

Three weeks ago, I brought home a swimming pool. The water park would cost $228.00 for the package deal that we could use for roughly six weeks, since they go back to school the second week of August. The pool cost $249.00, plus no driving, no parking, no inevitable registration ticket for the van because I am incapable of ever paying for it on time, no over priced concession stand food and drinks, no wet seats in the van, no eeewwww every time I see someones diapered baby in the water, and we can use our own pool until it gets cold, whereas the water park closes after Labor Day every year. The pool took less than an hour to assemble and start filling. It is NOT my fault that the Dearly Beloved decided that the entire back yard had to be cleaned up, taking a full day, before the pool could go up. I would have made the kids clean up the area the pool was to be set up in and done the rest later as incentive for the kids to be able to get in the pool!

Two weeks ago I brought home a swing set. Again, it was a great deal, and all three kids love it. I bought a baby swing for Jack, and there's a nifty saucer thing that will encourage his abdominal muscles to strengthen while he balances himself in it! That took a full day to assemble.

Last week, since we are a family of five now, and since the front porch glider canopy is long gone, and cannot be replaced anywhere, and it's only a two-seater anyway, and looks really junky and broken down on the front porch, I brought home a new glider. The old canopy-less glider is now under the tree in the back yard, and the new glider resides on the front porch, shiny, gleaming, smooth and canopied! Which really has nothing to do with us being a family of five, but it's just the perfect size for My Love and I to sit on the porch in the evening breeze.

And The Dearly Beloved said to me, "If you bring anything else home for me to put together, I'm going back into the house and pretending I never saw it. You're on your own." I'm pretty sure that he meant it, but I'm not going to test it out. I did see his chest swell out quite a bit when he saw how much fun Jack was having on the swings and saucer while The Girlie and The Poddest of Pods were whooping it up in the pool.

I love my new job...been there since June 8th! At my old job I was working about 80 hours per week with nary a thank you, all for $50.00 per week travel reimbursement. This job? I'm working about 40 hours per week for roughly the same pay, but the travel reimbursement for two weeks paid for the swing set, the pool and the front porch glider, including tax!

A huge thank you to the Dear Daddy for all of your hard work and for all of the great fun your children are having as a result!

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