...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Saturday, June 27, 2009

Overhauling the Homestead Part I

These have been very busy days. I've hired someone to help me, since I'm not allowed to do anything. I'll call her Miss Susie. So far, Miss Susie has rearranged the living room and dining room in anticipation of needing a swing and eventually a high chair to fit in these rooms. She's also helped me start on the garage. We open the big door and prop the house door open for an hour before we start so that it's not so hot and the temperature is tolerable. There's a huge pile of books, clothing, utensils, blankets and all manner of junk stacking up on the front porch. Both of The Littles are out of school for the summer now, so there's quite a bit of dissent on my decisions to toss toys they've had since The Oldest was two! I'd always thought that I'd get to those many boxes in the garage - we've been here in our new home for almost four years - but I had no idea that it would take me so long to get it done. Or that it would be a surprise pregnancy that finally spurred me on!

Miss Susie found a crate of baby linens and three crates of baby clothes. I could kick myself for getting rid of so many baby things in 17 consecutive yard sales before we moved...but really, who ever would have dreamed that we'd need baby things again? The Oldest and I sorted the clothes into piles...girl, boy, unisex. I am still scared silly, but with three days after the amniocentesis and still no complications, I feel fairly confident the The Newest is going to stick! I am actually starting to feel hopeful, and - dare I say it - excited!

And excited I should be! Miss Susie hauled the cradle out of the garage and gave it a thorough cleaning! It's in our bedroom, sparkling and waiting for a brand new layette for a brand new baby!

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