...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


MusicPlaylistView Profile
Create a playlist at MixPod.com

Monday, November 16, 2009

A First Visitor

Will's very first visitor at home was none other than Grandma Emmie within an hour of his arrival home! It is just so right that she was his first visitor! It was sooo good to finally be able to have visitors! She kept giving Will sidelong glances while I fed him, and came over to see him briefly. After he'd eaten she had free license to hold, hug and squeeze him! It was so good to have my wonderful friend holding yet another of my new babies. Grandma Emmie and I knew each other for a while before we became friends. Once we were friends we were thick as thieves from that day on. She is very, very dear to me in so many ways, but especially when it comes to my babies. We've had the exact same discussion every time she's held one of my new babies. My babies are her babies and The Littles are her Littles. They have never done without for the lack of natural grandparents in their lives. They've always had Grandma Emmie and Grammy and Grandpa R, and even Grandpa's mom, Great Grandma R!

Grandma Emmie was able to rub a burp out of The Willister as only a seasoned pro can do! And she noticed how strong he was. "Look at him holding his head up like this! He's so strong already!" Grandma Emmie is truly a wonderful Grandma, and always the first to sing the praises of The Littles!

Grandma Emmie and The Girlie had had their heads together for days about something. When the Girlie got home later, I got to find out. She came out with a gift bag she'd been hiding in her room. I don't know where she'd hidden it, but she'd done a good job of it!


Inside was a darling little romper for Jack and a pretty bracelet for me! She was quite proud of herself for keeping the secret!



"It was supposed to be for the Baby Shower," she said, "But you can have it now!" Too, too sweet!
Posted by at

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)