...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Thursday, March 11, 2010

Tracking, Rolling, & Elbows!

Jack's big sister is one of his favorite people on the planet. He often spends Saturday and Sunday mornings in her arms for a warm snuggle while I get his bottle ready. Any time that I put Jack down someplace and turn an instant later to find that he's gone missing, I only have to find Miss Peach to find My Ducky Boy. He is her real live baby doll and she has appointed herself the guardian of all things William. Will has always been able to screw his head around 360* to track me, and now he does it whenever his big sister is afoot.

On the play mat this week Will's new skill is turning onto his side and holding there for about 3 seconds before flopping back onto his back. He only does it on the play mat, repeatedly, and no amount of coaxing can get him to do it on any other surface.

He continues to engage in quiet back and forth babble with me, especially in the late morning, after his first nap and second bottle, when The Littles are at school and the house is quiet. He's very tentative about it yet, like he's just now certain that if he makes a noise I will make it back to him. He often does this chatting thing with his little grabbers held together under his chin. He wiggles and smiles when I jabber back to him. Then he gets an expectant sly smile and jabbers to me! It's FUN!

On the 11th, Will had his first visit from Anna, the Early Intervention specialist. It was mostly interviewing me that first day, as by the time she was ready to hold and greet Will, he was working on a tummy ache. He was fine with her holding him at first, but quickly started with the hard crying that heralds gas pain. I sat with him in my lap, rubbing my fist in circles on his belly while the farties rolled out. He was content to sit and stare at Anna, smiling at her now and then, as long as I didn't stop working on his belly. It amazes me still that I can dig so hard into his tummy to get relief for him. By the time he was de-farted it was time for Anna to leave. We'll try again next week. At least the initial meeting was a success!

In the evening after his first EI meeting, Will started rolling onto his sides and staying there! I usually put him on the floor surrounded by toys. He would roll over to see a toy more closely and then it was very clear that he was flipping back onto his back when he wanted to rather than simply falling back. Then he'd see a toy on his other side and roll that way! He entertained himself for an hour this way!

And my new favorite body part are his sweet pointy elbows! They are too cute!

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