...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Saturday, May 29, 2010

Bumbo

Bumbos kinda give me the creeps.Not sure why. I think it's because I first saw one while I was still waiting for Will's arrival, and the only time I ever saw a baby sitting in a Bumbo it was a baby with Down syndrome, and maybe I was still in a little bit of denial......you know, that bargaining stage, "Dear God, Make my baby have only 46 chromosomes and I promise, I promise, I will never buy a Bumbo." Didn't work. But that's fine. We adore our Jax-Snax' extra genes, and well, I finally see the value in this funky little seat. It took forever to find one that wasn't pink!
The Snack isn't too impressed.
He does find the pommel to be a suitable chewy...
...as well as the sides.
I do believe I'll be going back to the store to buy the play tray...
so it can serve the intended purpose of helping Jack stay upright and work on his core. Silly boy!
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3 comments:

To Love Endlessly said...

if you roll up a towel ans place it in front of his chest, that'll help him to sit upright too. so funny that he likes chewing on it. kids... :-)

May 30, 2010 at 4:25 PM
Tracy said...

Oh we've been using towels for everything with Will! There are towels of different sizes all over the house. If you want to take a shower, you have to scavenge for a towel! Thanks for the suggestion! I only had him it in for a few minutes that day...clearly he was hungry! When I try to work with him in it I will certainly use a towel! Thank you for your notes!!!

May 30, 2010 at 5:12 PM
Unknown said...

We got the tray for Gabriel. It helped a lot. In fact he still loves his bumbo. (I am not sure if it is because his sister also likes it or if he truly still loves to sit in it.) It also comes in handy with working on skills the therapist assigns instead of confusing him with his high chair. Best of luck. William is getting SO BIG!

May 31, 2010 at 7:21 PM

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