...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Thursday, May 20, 2010

Multiple Choice Question...

This is what happens when:

a) The Little Baby Squee who just got out of the hospital the day before suddenly gets a fever, a wet cough, expiratory wheezes over all lobes front and back, rhonchi in the upper right posterior lobe, grunting respirations, nasal flaring and sternal retractions with blue feet and hands, then throws up dinner all over the car during the mad dash through darkened streets on the return trip to the Emergency Room

b) When said Little Baby Squee suddenly becomes as stable and comfy as you please within minutes of being bum-rushed through the ER doors by his crazed and sleep deprived Mother, dragging sleepy eyed Olders in tow

c) When said sleep deprived Mother and deliriously silly Older Sister get bored while waiting for the pediatric on call doctor to come see the suddenly quite stable Little Baby Squee

d) The Big Brother, aka The Podster, is asleep on the end of the gurney, having been yanked from a sound sleep to accompany said Squee, Older Sister and crazed Mother on the mad dash through darkened streets, and is therefore unable to render rescuing aid

e) All of the above


Turns out it's neither a cinnamon roll or a tortellini...it's been a pork chop or a side of bacon all along!

And I'll leave you with that. I promise I will post eventually on our adventures in the hospital...if any of these kids will just cut me a break FOR FIVE MINUTES!!! I'll post on that too! Eventually.
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2 comments:

Kaitie Jane said...

hahaha five minutes? that's all you ask?? lol is everything okay as far as your lovely hospital run? btw i posted new picts =)

May 20, 2010 at 10:27 PM
To Love Endlessly said...

haha! cute :-)

May 21, 2010 at 5:10 PM

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