...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album

And I'm singing Aaa-ayyy-men, I'm alive!

William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.

"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"

Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10

Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5

For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14

Monday March 5th, 2010

So Why Stinkerie?

It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."

Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!

Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!

Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water

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Sunday, April 3, 2011

Pictures! Finally!

I could have titled this post "March Madness" because it is a sweeping look at what Jack has been up to this month. I also could have written several quippy posts to go with each set of pictures and just pretended that I've been posting all along, and that you, Dear Readers, have just been remiss. However, if any of you are still following me, waiting for me to get off of my duff and actually write a post, you would recognize the lie. So here we are, Jack's month in pictures: His new trick is transitioning to sit. Use your imagination please, because he doesn't fully sit up without something for support At the cardiologist's office in early March The persistent cardiac defects are not slowing him down one bit It took a decree from God before the nurse would believe that I would NOT allow him to fly off the table...she finally left the room, but refused to close the door on us! Kneeling practice...wherein the skill is to stay upright while using his arms to play Which led, eventually, to pulling up... ...with a little stabilization thanks to The Dear Daddy... ...and he's standing tall to see his doggy Sopha-Loaf! Here he is showing off how well he sits up with the confidence prop of a sturdy box of filing-to-be-done but in actuality won't-happen-any-time-soon! He has to visit Princess too! Which all eventually led to this! I was sitting on the couch just wondering when he'd pull to stand on furniture, and up he went! Apparently, the Kleenex box is a powerful motivator! ...and Big Sis stood by on guard... Now for some leisure reading with Daddy And more standing skills. You know, just to prove it wasn't a fluke! I love this happy boy! He gets everywhere in the house now in lightning speed. He has a fondness for the vacuum cleaner Bad hair day Discovering his shadow... ...and trying to kiss it! The Girlie was highly amused with a story I told her about when she discovered her shadow. The Pod wanted to know about when he'd found his. Sadly, I had nothing. Finally I said, "Honey, when you were little like that, you didn't stop long enough to create a shadow! You were always on the move!" Happily, he was satisfied with this. I was a little sad. But, it is what it is, no? The boy LOVES his bath! And he adores Grandma Emmee... ...and the ball she brought him for St Patrick's day Let's help with the dishwasher... ...it makes a fabulous racket when you shake it! And there it is...his month in pictures. I love you baby!


Amy L said...

Oh goodness, he is just the cutest little thing! I especially love the picture of him in his crib all smiles:)

Tracy said...

I LOVE that picture! There are six more just like it, only with a blurry blob where Jack is, because he was boppin up and down and having the best time singing and bouncing! He's an action baby now! There were about 15 pictures from the cardiologist too, but none with all of him in it because he would not hold still! The nurse was really afraid he'd fall right off the table!

ch said...

seriously? what IS it with dishwashers? i cannot physically get between biggs and the dishwasher if he sees it's open or he will MOW. ME. DOWN.
And i have to say, there is NOTHING more delicious than a baby bottom inside a pair of footie-pajamas. Yum, yum, yum.