...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Saturday, August 22, 2009

Window Treatments

Since when did hanging a curtain, drape, shade or louvers in a window become a "treatment?" Had the treated window been ill? Was it well now? Would it relapse if said treatment were removed? And what if the treatment gets dusty? Will the window get allergies? These are tough questions. I don't have the answers. I'm going to be awake all night worrying about this. Crap!

I've always done double duty window treatments for our children's rooms. Louvers provide an extra layer of a noise barrier. One of the first things I noticed when we moved into our new home is that everyone here has a gardener. Everyone. And there appears to be a city ordinance that no two lawns on a single street may be mowed at the same time, or on the same day. My neighbor on the right is on Tuesdays. My neighbor on the left, Thursdays. My neighbors across the street are Monday, and the two story house across the street is Wednesday. Every Wednesday. The two story behind me is Thursday, but late in the afternoon. The two story to the right of them, and closest to our bedroom also has the gardener every week on Saturdays...first for the front, then for the back. And the two story two over to the right, well I don't know when theirs comes because their yappy little dog never shuts up! Never. I know all of this because I am a night nurse and therefore a day sleeper. It was wasn't long before I'd invested heavily in 38 decibel earplugs and white noise. We only see our gardener when ever he feels like showing up!

Double window coverings also provide a filter for bright sunlight for little people who need to nap during the day. And they are a blessing to those same little peoples' Moms who get very crabby when the little people don't nap! So, I took Our Littles to Lowes again to buy louvers. Say that three times fast! And The Littles and I walked along the low dresser under the window to be treated and measured and marked and drilled. This was really quite an accomplishment when you consider the fact that every step I took was accompanied by The Oldest maintaining a death grip on my hiney should I fall, and The Youngest looking like I might at any minute actually fall. Good grief! But we got them hung and The Youngest was really happy because he'd finally gotten to help with something in the Baby's room! Now all I have to do to finish treating the window is to find a suitably cute fabric the match the paint, carpet and furniture! Then the window will feel much better!

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