...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Monday, June 7, 2010

Grammy!

"Oh Grammy! I've waited so long to hug you!"

I found out Thursday morning that my 'Other' Mom would be visiting California from Idaho to take care of a cousin after surgery "...and to see my new GRANDSON!" I was so happy! I called right away to get all the dirt on when she would arrive, how long she could stay, etc, etc, and most importantly, when could we see her!!! (Mom and Dad adopted me when I was 34!)

Sunday evening from the Fly-Away shuttle she called to say she'd landed safely and was en route! We were talking about how soon we could get together and I asked, "Well, would you like to have Jack all to yourself for a little while? The Olders will be in school until noon." So a plan was hatched to meet at IHOP the next morning! I was so excited!

I got to the restaurant first and waited anxiously. Mom is never late, ever. But today she was. Figures! I watched and waited and when I saw her come in I sprang up to meet her at the door with Jack in my arms! Yippee-Skippie!
They started charming each other right away!
And Jack told her stories...
...and got plenty of smootchies...
...and took a nap!

Once the kids were home and I'd built up the drama and suspense of "The Special Mystery Visitor" as much as I could, Grammy arrived at home for a visit with everyone! The Girlie answered the door with "Grammy?" and then "GRAMMY!" and The Pod Pie was not far behind with hugs, kisses, happy faces and delighted chatter! I wasn't sure they were going to let Grammy get inside the house with all the hugging and kissing and throwing 'round of little arms going on in the front hallway!

Now it is a well known fact that it is a world wide and commonly accepted thing that Grandparents have the right, the duty, the privilege, of introducing babies to all things tart or sour. Lemons, pickles, etc. If you didn't know that fact, well, now you do! Here's Jack getting his first tiny little taste of a sweet lemon filling from from the lemon cream cheese pie that Grammy brought!"Hmmm...what's this?"
"Not bad. Not bad at all. I think I might like this!"
And finally, "Can I have more, please?"
Grammy is staying in California for at least two weeks! We can't wait to see more of her!
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