...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


MusicPlaylistView Profile
Create a playlist at MixPod.com

Friday, August 13, 2010

A Confession

So I'm not really super fond of bathing babies. Sure it's fun the first time. Maybe even the second and third time. But really, by the fifth time, one of two things have happened. Either you're so skilled at this task that you get the baby stripped, bathed, clean, diapered and into a new outfit in 1/8th of the time it takes to prepare the bathing paraphernalia, or option two, you realize that you are so inept and dangerous at handling a wet, slippery, squirming little fish that you rush the job and finish, clean or not, in roughly 1/8th of the time it took to gather the bathing paraphernalia. Either way, it's not my cup of tea! Anymore I just toss a towel in the tub and in he goes!

He starts off up here...
...with some chin lifts and tummy crunches......see that ridge along his abdomen...weak abs, strong connective fibers...But with more chin lifts and tummy crunches......and some of this action......he winds up......all the way down here!Snug and dry!Better get him off my bed before he pees!"Mmmmmm, tasty towel!"And now that his protective layer of dirt has been removed, he's ready for his bottle!
Posted by at

2 comments:

Amy, queen of the world. said...

I'm not terribly fond of bathing babies either when they have little control over their floppy-ness. I also subscribe to the "Oh, just bathe the boys at the same time. Saves time." school of parenting... but the big one is never ready to get out when the little one is. So I leave him in the bath and talk to him the entire time (so I know his head isn't stuck under water) that I'm getting the little one dressed, and I ALWAYS ALWAYS ALWAYS walk in to a huge puddle of water in the floor. *sigh* All of that to say... I'm not a fan of bath time. :)

Glad you started stalking me... stalking you shall be fun! :) hehe

August 15, 2010 at 2:15 PM
Tracy said...

I hear your pain Amy! I did the joint bath until the Oldest declared that The Middle was "vermin" and started insisting on her own bath time. *sigh* I say lets go back to the olden days, bath them once per month, preferably outside in a big pot, and THEN I'll put out clean towels and clean rugs!

August 15, 2010 at 2:25 PM

Post a Comment

Subscribe to: Post Comments (Atom)