...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Saturday, August 7, 2010

Hollywood, Travel Town and the Train Museum

After touring the cemetery, we all piled back into the car. But I have to get this off my chest first.

First let me say, that as much as we all love getting away on a fun time with The Dear Daddy, I hate his driving. I hate it. It makes me nuts. Slow lane. All the time. Not even a thought of going 1/10th of a mile over the speed limit. More often than not, a few miles less. Who is this man? Surely not the big scary looking mustache clad Harley riding biker dude I was dating all those years ago. (Whom, by the way, my friend Ann is still scared silly to lay eyes upon!) Yep. It's still him. The same ol' guy. (And yes Ann, he does still look scary, but only until he smiles!) Even back then he was safety conscious. And now, I think he's trying to exponentially offset my inner speed demon by proxy and try to win a few points for me from The Big Man Upstairs. I have a lead foot. I hate being behind the slow car. He drives like an old lady. A very old, old lady. It makes me nuts.

To his credit, in all the years we've been together, I have never had a single experience where I've called to tell him where I am lost, describe a few landmarks, and where I'm trying to get to that he has not been able to tell me exactly where to turn, how far to go, and what to do once I arrived. Never. Not once. LA is a huge area. He knows it like the back of his hand. As well as surrounding areas like Kern, Orange County, Ventura, San Bernardino and Riverside Counties. Every time we take a trip to places like Big Bear and Mammoth Lakes, old worn out town in Nevada, wherever, he knows obscure little back roads with no signs, and which ones to turn down to see something wonderful. So I guess as long as he's behind the wheel, I will deal with his matronly ways. Even if it does make me nuts! You know that car you've been stuck behind for twenty minutes trying to turn left? You know the car. The one that has had fifty opportunities to turn but hasn't because that speck on the horizon might be an approaching car? Yep...he's that guy! And it makes me nuts!

Okay...so back into the van to get to Travel Town. All we wound up doing in travel town was riding horses, but the kids thought it was worth the trip. After all, to get from where we were in West LA, the Dear Daddy drove through Bel Air, Beverly Hills and Hollywood. At the end of the day, both of The Littles said the best part was when they got to see the Hollywood sign through a murky din of smog. Goofy kids!

Petting the mules.
This distressed look is due to the bumping!
Once they rounded the bend, she found her seat and it was smooth sailing from there!
The track is very pretty. If you look closely, you can see The Pod on the second horse and The Girlie on the third.
The Train Museum is up next!

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