...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Friday, September 24, 2010

Rolling, Rolling, Rolling...

Yes, there are pictures, but first, some mindless drivel. Some people call it "train-of-thought." I believe in calling a spade a spade. It's drivel.

For as long as I've had breath, I've wanted babies. Anyone who knows me knows that I came out of the womb wanting my own babies. And since I've always wanted babies, I've always been a sponge for information about babies. And I remember long, long ago, long before we were inductees to the T-21 Hall of Fame, reading about and hearing people tell stories about their babies who preferred rolling every where to crawling. They were always written about and spoken about with affectionate humor, but I still thought it was an anomaly that a baby wouldn't crawl. I mean seriously, it's a baby for crying out loud - it should crawl! I don't know why I am averse to babies who roll. But I am. Don't ask me why. Like I said, I don't know. And it probably wouldn't matter if I did know. Because, this being the case, Jack of course, has taken to rolling everywhere he wants to go. Yep. You got it. Rolling. Not crawling. Rolling. So there you have it. He rolls. He's a roller. And roll he does!

I dutifully put him into tummy time with several noisy, attractive, favorite toys surrounding him, placed just out of reach - just like his OT and PT tell me to - to stimulate his desire to reach for them, and thus be motivated to inch forward and eventually to crawl.

This is what Jack does instead...
Which way will I go first? Upon which toy will I bestow this morning's first globs of slobber?

Ahhh, to the left!

First the wind-up, and over I go!

It looks like the piano wins!

Now where to?

Ah...the musical shape sorter is up next!

Next some fun with the burp cloth...

...burpy cloth peek-a-boo!

Now for a visit with my doggy Sophie!

And now let's go see Princess!

Hi Princess! Are you sleeping in there? Do you want to come out to play? Please? Okay, maybe later!

Ohhhh, I love my tambourine!

It's jingly...

...jangly...

...fun!

And I can wear it on my face!

Alas, the stars stand alone. "Don't worry stars, I will catch up with you later!"

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