...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Friday, November 12, 2010

Jack Turns One!!!

Jack and his presents!

"Oh my! Are these really all for me?"

"I like this birthday and turning 1 stuff!" Thumbs up!

The big cake with ugly dark blue writing.

Jack's mini cake with a better color of blue!

"What's up?"

"Ohhhhh...what's this?"

It took him no time to dig right in!

The candle didn't last long...

While The Dear Daddy and I sang Happy Birthday...

...Willie used the candle to stab the cake!

He still hasn't tried it yet...and this is probably the 30th picture!

The aerial view.

Still hasn't tried it...

...so I put some on his lip!

...finally tasting it...

...and it's gone!

Now he's discovered that he can feed it to himself!

"Mmmmmmmmmmmm!"

"Oh, this is good!"

"So is this hand!"

Another aerial view of the carnage!

Jack had a ball playing with his birthday cake!

We were falling all over ourselves laughing at his antics!

Eating it off the tray.

And I think that's how he got the other eyebrow!



Patti ~ If you are reading this ~ I promise, with my right hand clutching my entire hoard of chocolate over my heart, that no dogs were involved in the clean up! Promise!
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3 comments:

Becca said...

Awwww, happy birthday, cutie!! Omg, those photos are hysterical!!! You are very, very, very brave. LOL

November 16, 2010 at 6:53 AM
Tina said...

Happy Birthday Sweet Jack! (hugs)

November 16, 2010 at 7:06 AM
txkerri said...

LOL LOL LOL
Too cute!!! Happy BIG #1 Jack!!!

November 16, 2010 at 11:22 AM

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