...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Friday, November 26, 2010

National Lampoon's Christmas Vacation

So we watched our Thanksgiving staples! First up, Chevy Chases Christmas Vacation! Next up, Planes, Trains and Automobiles. We gotta watch it. Once is an event, twice is a precedent, three times makes it tradition!

Clark is opening his Christmas bonus and it's not what he expected:

Ellen: What is it?
Clark: It's a...one year...membership...in the Jelly of the Month Club.
Cousin Eddy: Clark, that's the gift that keeps on givin' the whole year!
Clark: That it is, Edward. That it is, indeed!

Clark: If any of you are looking for any last minute gift ideas for me, I have one. I'd like Frank Shirley, my boss, right here, tonight. I want him brought right here, with a big ribbon on his head. I want to look him straight in the eye and I want to tell him what a cheap, lying, no-good, rotten, fore-fleshing, low life, snake licking, dirt eating, inbred, overstuffed, ignorant, blood sucking, dog kissing, brainless, d%$#less, hopeless, heartless, fat-assed, bug eyed, stiff-legged, spotty lipped, worm headed sack of monkey shit he is! Where's the Tylenol?

In the end, after Cousin Eddy actually kidnaps Clark's boss and brings him home tied with a big red Bow, Frank Shirley adds 20% to what ever Clark's Christmas bonus was last year.

That's what I'm hoping for now...cuz times are getting scary lean. 20% of what we had last year would be a step up. Not even 20% on top of last year...just 20% more than right now. Pray for us please, if you have a mind to.

This rant cracks me up every time this movie is on. Which is good, because while I've always wanted to write this down, in case I ever need it someday, it took about 25 pauses and rewinds to get it all just right! We're having a Clark W. Griswold holiday.

Post script: thanx Holly W for the comment! I couldn't agree more! And I appreciate the prayers! More about our situation in a coming post.
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2 comments:

Holly W said...

two things...
1. the. best. Christmas. movie. ever.
2. praying...hope things turn around...

November 27, 2010 at 11:33 AM
txkerri said...

LOL
THAT is the best movie ever!!

Prayers wanted? You got 'em!!

November 27, 2010 at 9:14 PM

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