...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Saturday, January 8, 2011

Progress of Sorts

I was not tickled pink to be awoken by Jack at 3 am to have a bottle. What happened to the baby who slept through the night from about seven weeks? Was I dreaming that? Nor was I tickled any shade of any color that said baby, having finished his bottle, was not sleepy eyed and ready to return to his nice warm snuggly cradle, but was rather awake and ready to play. At 4:30 this morning I plopped him into his high chair and warmed up some cinnamon apples with oatmeal and tried that. He wouldn't have it. Warmed it a little warmer. Still nothin' doin'. Warmed it a little more, closer to a temperature I would eat...and he rolled it around in his mouth, swallowed it down, and proceeded to gobble it up. It cooled while I was feeding him yogurt icy cold from the fridge, and the next bite delivered was promptly returned. So I warmed it again and he finished off the bowl! Yeah!

After rolling around on the floor for a little while longer, The Pod of Pods came out to join his sister asleep in the living room. Jack snuggled up briefly to sleep in the mosh pit of blankets and discarded cushions.That nap lasted for about 15 minutes, then he was all about the fun and games again. At about 7:30 he stayed asleep and I scooped him up and into to his cradle for a nice long snooze. When he woke again hours later, The Dear Daddy was on duty so I slept on, warm and comfy in our big bed all by myself! Bliss!

2 comments:

To Love Endlessly said...

Sounds like our schedule right now. Granted we have 2 month old twins that are keeping us up. Sure wish some warm oatmeal would do they trick for their hungry bellies!

CJ said...

He's so cute!! Cheeky gets up every morning around 4am, but nurses and goes right back to sleep!