...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Monday, January 10, 2011

Smorgasbord & Pictures

Jack has been doing so well with the hot/cold foods, that I kinda went ape and rolled out the smorgasbord for his feeding therapy today! He had carrots with a scoop of rice cereal, chicken which got really runny when it was warmed...so that got 2 scoops of rice cereal, and since he was eating cereal he would need a tablespoon of flax seed oil mixed in, applesauce with about 1/4 cup of rice crispies, and one of those Dannon Dino baby yogurts. Yes I broke down and bought the baby yogurt. For $2.87 you get 12 1-3/4 ounce servings. I didn't think the price was too ridiculous for the convenience. Never mind that Yoplait sells 16 2.5 ounces servings of Go-Gurt for less than the Dannon. Ah well. He ate really well to show off for Dr Elaine this time and I was pleased as punch! After the meal I don't know what struck me. The Middle was pestering me for a pre-dinner snack, so I gave him a cheese stick. I also had one, and while I was at it, I handed Jack a cheese stick too. Yes, I watched him like a hawk! And yes, once the cheese stick warmed and softened in his grubby little grabbers, he was able to bite off alarmingly huge bites...which he promptly worked to the front of his mouth and spit out without any gagging or choking. I do know the Heimlich remover. But it wasn't needed. He had a ball biting into this rubbery thing and he banged it against his head and on his tray and batted at it with his hands before once again sinking his sharp little fang into it. His top gums are getting bumpy and wide, so I think he may sprout some top teeth sometime this year. Then again, maybe it's just practice. At any rate, it was clearly very enjoyable for him to chew on. Tomorrow on my errands I'll pick up one of those little mesh bags that will hold a piece of fruit to be mauled in safety within it's confines. That might be fun for him.

Please excuse the mess on the front of his outfit. I'd planned a trip through the tub right after meal time, so I didn't put a bib on him. I love the pictures where he's all squinty eyed!




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