...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Tuesday, April 27, 2010

The Oldest Littles and The Girls

This picture was taken in May of 2008. It is still one of my very favorites, and quite a testimony to the mentality of the Deadly Pit Bull! Sophie is the tri-color with the big slobbery smile and you've already seen pictures of Princess with her puppy, Jack! They look so ferocious and the kids are clearly terrified.

Pit Bulls seem to have an uncanny ability to sense ill intent in a person. We've been approached many times out on our walks by people and children wanting to pet our dogs. They are always happy and tail wagging and wanting to be pet and scratched, jumping all over each other for the attention of the new comer. One day in the park we were approached by a shifty looking guy, dirty and skinny and twitchy, with scabs on his face, and The Girls were instantly on alert. The big scary looking one, Sophie, immediately took up her post behind my legs...you know in case we were flanked! Seeing how Princess and Bleu (Our BIG male) were instantly tense, I told the guy not to come any closer. When I said it again and he still kept coming, Princess went and sat down between us and him. When the guy tried to go around Princess she repositioned herself between him and us and I purposely let go of Bleu's lead and he took up his post between us and him and issued a warning chuff. I am so glad we brought him to the park that day! I said "They don't like you. You should leave." He wanted to ask questions! Judging from the specific questions he asked, (Were they fixed? How old are they? Were they related, etc, etc) I thought maybe he was thinking of swiping our dogs to either breed or fight them. Yeah - good luck with that! Let me know how that works out for ya! Sophie was emboldened by her siblings to come out of hiding and stare him down. I didn't answer any of his questions, and said instead, "They really don't like you. I can probably hold two of them off, but not all three." He finally decided to leave, seeing as how only Sophie was close enough for me to grab and I habitually carry a baseball bat when out for walks. Once the guy was gone for good, all three pups went back to chasing each other and chewing on each other and having a frolicking good time chasing pine cones!
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