...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Tuesday, August 10, 2010

I Felt Kinda Stooopid...

The end of July saw us visiting with Auntie Bits and Auntie Dee Dee. I was relating the story about the ST thinking that Will was wearing a good size clothing, 3-6 months, even though he was 8 1/2 months old. True the outfit he was wearing was a 12 month size, it was big and loose and drapy. I felt a little dumber when the outfit the kids changed him into was a 6-9 month outfit. Was I exaggerating? No...but I was thinking that the Carter's brand just ran big. Here he is this morning in a Disney Babies outfit...3-6 months! And to prove that I have not lost all of my marbles...
...here he is in that Christmas outfit! It's by Mini-Wear and it's also a 3-6 month outfit.
I think the pattern will wear out before he outgrows it!
He may well be sportin' this outfit for this Christmas!
Yes his eyes are closed...it's the red eye flash. It functions by making Jack close his eyes altogether, thus eliminating the red eye effect. I included this one because he just looks so tiny!

And yes, he is wearing footed rompers in the middle of August. It's currently 63* in the house. But hey, I am 45 and if I do so much as breath deeply my head will break into a sweat and it won't be pretty. This way, he's warm and comfy and I do not feel as if a blast furnace has been lowered over my head. I LOVE the technology that has brought us Central Air and evaporative coolers! Love it!
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2 comments:

To Love Endlessly said...

that 3-6 month looks like it fits pretty darn perfect to me. :-) Little M is small for her age too, but I don't think she's quite that small. Guess it just makes the clothes last a lil longer. haha

August 10, 2010 at 5:27 PM
Kelly said...

LOL...our boys sleep in winter pj's too (because of the central air). It's always so COLD in our house!!

Tell me about small, Landon is 18 months old today and still wears some 3-6 months shorts. He's mostly in 6-9 month shorts. Yep, at 18 months old, he weighs a whole whopping 17 pounds:)

August 11, 2010 at 6:40 AM

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