...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Sunday, December 12, 2010

Baby Butt!!!!

Lately The Fuzzy Duckling wants to be on his tummy in the bath! Convincing him to stay on his back at least long enough to get washed is better accomplished if I give him lots of tummy time first!

He does a great job of keeping his face out of the water, but now he's learned to aim for it and after the initial thrill of the splash he comes up all red faced and sputtering and spitting bath water out of his nose...
...so I keep my hand under his chin when I see him getting ready to dive bomb the surface!
Oh that tushy!!!!
Little nekid baby butts are just one of the treasures of being a baby...like two little lumps of bread dough set out to rise!
Here he is after the wash and shampoo, back on his belly!
No, that is NOT a poopy particle! I swear it's a chip in the fiberglass of the tub! I've been able to edit it out of most of his bath photos, or cover it with a cloth before, but here he is inspecting it, and I didn't want to discourage any sudden flourish of fine motor activity...you know...in case he suddenly decided this chink in the tub was worthy of an attempt at pincering! (He didn't though! Just stared at it and yelled at it a little!)

After the bath, it was time for some snuggling with his big brother!
They are becoming Babe Ruth aficionados!
I love that The Middle is always so willing and eager to read to his baby brother. At least once a day I can find them with their heads together in a book! In fact, when The Middle's behavioral therapist is having a tough time getting him to do his homework, all she has to say is, "Would you like to take a five minute break to read a book to Willie?" The Fuzzy Headed Duck gets read to, The Middle gets to feel valued, and the reading portion of homework gets done! Check, check, check!

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