...And in the air, the fireflies, our only light in paradise. We'll show the world that they were wrong, and teach them all to sing along; singing Amen I, I'm alive. Amen I, I'm alive...

- Nickelback, If Everyone Cared

For All The Right Reasons Album



And I'm singing Aaa-ayyy-men, I'm alive!







William Leonidas November 12th, 2009
My only regret is that I cried so many tears while I waited for you.


"...I'll try ~ but it's so hard to believe. I'll try ~ but I can't see what you see. I'll try and try to understand the distance between the love I feel ~ the thing I fear ~ and every single dream. I can finally see it. Now I have to believe all those precious stories. All the world is made of faith ~ and trust ~ and pixie dust. So I'll try ~ because I finally believe. I'll try ~ because I can see what you see. I'll try, I'll try ~ to fly..."

Jonatha Brooke "I'll try"


Fear thou not, for I am with thee; be not dismayed, for I am thy God; I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10




Lilypie Second Birthday tickers
Now the word of the Lord came to me saying, "Before I formed you in the womb I knew you, and before you were born I consecrated you..." Jeremiah 1:4-5




For Thou didst form my inward parts; Thou didst weave me in my mother's womb. I will give thanks to Thee for I am fearfully and wonderfully made; wonderful are Thy works, and my soul knows it very well. Psalms 139:13-14



Monday March 5th, 2010

So Why Stinkerie?



It's simple, really. It's the first thing I whispered against my newborn little Dumpling's temple as I held him alone for that very first time. "There's my Little Stinkerie." And all was right with the world as I brushed my lips across his delicate dewy soft newborn-pink skin and sniffed at his sparse smattering of downy soft hair. Corny and sappy, huh? I can't help it when describing my new Little Puppy. But don't get used to it - I have been told I am "irreverent."



Anyway, it just came out and he's been Stinkerie ever since. As well as Stink Pie, Stink Pot, Stinkey Pete, Little Stinks, Stinks, Puppy, Ducky, Baby, Baby Head, Baby Head Jenkins, Jack, Jack-Jack, Jackie Boy, Jax, Snork, Snorkis, Snorkle, Billy Boy, Billy Bob, Bobby Sue, Billy-Joe-Jim-Bob, Will, Willie, Willister, and the name given by my mentor turned friend Beth - Snake. When I write to her I call him either The Snakester or Slither! And of course, Dumpling, because he is my Little Dumpling - warm and soft and comforting. It's alright to combine comfort food with baby names, right? Have you ever watched the movie Where the Heart Is? If you have, you'll know why I mention this in my defense!



Long story short, you're likely to encounter any one or more of these names in a single post. Because I can. It's my blog!





Something to Consider

Bad decisions make good stories.

Something to Think About

With any pregnancy, there are concerns. With any child, there are worries. When you have a diagnosis of Down syndrome, you know what to worry about. You know what to look for. You have a plan of action. With your typical child, there is no limit to the things that can 'go wrong' or 'happen.' There's no place to focus your worry and concerns. 'IT' will always be out there, waiting. You'll always be on guard. Even when the child is 55 and has grandchildren. With Down syndrome we have a battle plan. With Down syndrome, there is a finite number of things that can go awry. With a typical child, there's isn't. It's a crap shoot. I'm sticking with the Ds and taking the other two back to the hospital for a refund.

Head Above Water


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Thursday, February 24, 2011

Lots To Say

Jack's been discovering how his legs work! He's refining his 'crawl' to actually involve his legs, in a left~right~left three step fashion so that it actually looks less like a 'drag' and something more akin to an actually 'crawl!' If he's travelling 20 feet, I can count on the left~right~left action about every five 'steps.'

Here's a newsflash. On Tuesday night, Jack actually slept in his own crib. FOR THE FIRST TIME EVER!!! I love how he sleeps with his little butt up in the air!
It made me uneasy to have him all the way down the hall, and I had a really hard time falling to sleep. The baby monitor alerted me to when he woke at about 3:30, and into our bed he went. Along with the Girlie who later said in true Girlie fashion, "You know, Mom. I don't really feel safe with him in his crib. I think it would be much better to have him here with us. I just don't feel safe with him all the way down the hall in his room. I couldn't sleep." Notice how she's perfectly comfortable claiming our bed as her own whenever The Beloved isn't home!


And here's another new skill...he's transitioning from a semi supported sit to a crawl! He's discovered that he can get away from me, his OT and his PT. I guess the therapy is paying off?

This big news came yesterday morning while I was getting ready for work. This deserves a drum roll...Jack crawled/dragged himself over to the Woody doll, picked it up, and without letting go of Woody, he transitioned himself into a sit, tall and erect... and while triumphantly beaming up at me, continued the fluid motion of falling right over sideways! Boy was he ticked! Such brief triumph so quickly turned to tragedy! I propped him back up with the Woody doll to sit, so I could snap a picture or ten, but he wouldn't sit up tall again...more of a "I'm safe in this position" slump!

He's doing really well with the soy milk. He gobbles it down like his favorite dessert! I'm having a little trouble communicating with his sitter. I thought I'd been pretty clear that Dr Elaine gave the go-ahead for her to feed Jack spoon food twice a day. I'd lined up a bunch of breakfast foods and fruits, and a bunch of lunch foods and fruit and veggies. Suggested she feed him breakfast at about nine, and lunch at about one in the afternoon. Put out bibs and spitty cloths and all of his paraphernalia for preparing to eat. First day went well. Second day...I asked how he'd done and she said, "Oh, I didn't know I was supposed to feed him every day." I keep her because she's really good with the kids. She's no nonsense with that mouthy Middle Little, gentle with The Girlie, and she has genuine affection for Jack. Plus, what ever she may lack in common sense, she makes up for in keeping~my~kids~safe!

In tattoo news, the moon is starting to de~scab. Pretty term, huh? Well at least I didn't photograph the days where it was all gooey, beige~ish, blood starting to decay alternating with dry, beige~ish, blood starting to decay flaky! There's a plus, right? It's at the point now where there are just a few tiny beige colored flakes stuck to it, it's itchy like all get out, and the white of the moon is shiny and smooth and the underlying inflammation makes it look pink. Next up is the stage where it scabs over clear and is itchier than it is now. I don't like this stage. Plus, the muscle underneath started feeling like I'd been beaten with a hammer. Happened last time too. Yep, I'm a big baby about this.
But you can clearly see by the redness how inflamed it is...so I'm really not that big of a baby about it.
Here is it today!

Wednesday night was Jack's second night alone in his crib. Until he woke up at 3:20 to eat. Then he was in the big bed! Thursday night he slept through the night! Yay! I checked on him often, twice encountering The Girlie on her way back from checking on him, and he woke up at about 6:30 when the rest of the household was in full swing, getting ready for school. The Beloved got home Friday night and quickly nixed the Jack sleeping his his crib thing. Who is this man??? He never, ever allowed either of The Other Littles to sleep in our bed! Yep, he's back in our bed...but he again slept through the night!
I'll leave off with with Jack's latest skill...pulling up to kneel at the coffee table!
Jack has not one but two top molars trying to work their way in. There are sharp pointy spikes on each side of his top gums...but he hasn't really been cranky! Here he is having a chomp on his favorite new chewy!
Happy, happy boy!


I love this goofy face!!!

Wednesday, February 23, 2011

Where The Good Life Leads To...

In case you missed it, I saw this plastered all over the back of a Metro bus on the way home from the interview that landed me my new job. It pissed me off then and it still pisses me off today. The city I'm complaining of is high and mighty and full of itself, but I wasn't going to write about that, so I'll get on to what I'm really after...

First of all, in this town where the good life leads to! my office shares a communal bathroom with all the other offices on that floor. And in that bathroom there are typically four rolls of bathroom tissue all lined up on little spindles for your convenient use. Two of those rolls are good quality, absorbent multi-ply toity tissue. Two of those rolls are, at the bare minimum, ten-ply. Yep. You read right. I haven't actually taken it apart to count the layers, but they're THICK! As in you could take an entire bath with one square. Do your dishes. Wash your car. Scrub out your sinks. This got me to thinking. While I am not a tree hugger, I have to wonder, do these elite people even care about our planet? Huh? Do they? While I do not believe we should kill an entire industry to save an owl, I also do not hold with abusing the planet. We live here. Let's keep it clean. Let's do it sensibly, but let's keep it clean.

Being that the communal bathroom we share is also shared with Baby Steps, and being that there is a baby changing station there complete with a Diaper Genie, sometimes our communal bathroom smells like...well the stuff that comes out of babies' butts. I was a baby, I've been around babies, I've had my own babies and do, in fact, have a baby now. This is not a good smell. So, one day this week I trekked up to the third floor communal bathroom. The first floor doesn't have a bathroom. I guess they go in the potted plants. The third floor bathroom was an adventure into rest rooming properly. They had music. They had plants. They had real flowers in a vase on the counter top. They had six rolls of toity paper in each stall and all of them were the ten-ply variety. My next shock was the caliber of hand soap. Not the pleasant enough but clearly industrial grade crap I'd been using in the second floor bathroom. No, this stuff was in a pretty burgundy pump right out on the counter top, next to the flowers, with olive oil and infusion of cranberry. What the heck? And the paper towels? Soft, bi-fold two ply, not the crappy sandpaper tri-fold single-ply rough and chap your hands crap you get out of the towel holders on the second floor. Oh well. What can I say. God never intended this planet to last forever.

And another thing. What's up with the names on the streets? They don't have avenues. They have Avenidas. And nothing is abbreviated. Nope. You'll only see Boulevard spelled out like Avenida and Street and Court, as well as Place and Lane. No abbreviations, please. I've seen lots and lots of personal names for streets. First and last names, please. And then there's the regular b.s. named streets like Melody Lane. Yes, that's a real name. I thought it only existed in Clark W Griswold's world. I was wrong. Rainbow Glen. Sugar Frost Court. Mountain Mist Orchard Road. Ocean Fog Way. Really? Yes, really. Right smack dab in the middle of the desert that is California, a good 80 miles or more from the ocean, they have the delusions adequate enough to name a street Ocean Fog Way. Go figure. There's also Sea Spray Lane and Avenida Lighthouse.

When I drive through Jack in the Box in my up until now decent neighborhood, which is, I've come to see from driving the streets of Where the good life leads to! is really sub-par, mediocre at best, all of my order gets stuffed into one bag. Doesn't matter if I've ordered one meal for myself or four plus meals for the family. It all gets shoved into one bag. Not here. Not in this city. Every item gets it's own bag. My extreme sausage sandwich got it's own bag. Likewise for the order of hash brown sticks that comes with the combo meal. And the mini-waffle cake? Got it's own bag. They guy asked if I wanted salt or catsup, (okay Holly...yes I was alive in 1967, but I'll say KETCHUP just for you babe!) and I said no because I was afraid it would come in it's own bag. Dang. I have a hard enough time keeping my van clean without fast food joints where the good life leads to! junking it all up!

One good thing I've noticed, despite the congestion because every one who is anyone wants to live, or at least work in this city, is that when I put on my blinker to change lanes, people let me. They get out of the way to let me in. It might be the way I drive. It might be that they don't want their shiny Lexus or Beemer to get dented and scratched. It might be both. Or it might just be that life is all sunshine and rainbows in the city where the good life leads to! I don't know. I don't live there. Have I gone on about this enough yet? Cuz I've got more. Lots more. I'm just sayin'...

Tuesday, February 22, 2011

Oy, Soy

So, at Jack's 15 month well baby check, the doctor said, among other things, that he wants Jack to switch entirely to soy milk. Which is quite different than the "extend formula for six more months" he said at his 12 month check up. The problem here is that neither I nor Dr Elaine, Jack's SLP, believe he's taking in enough calories and fat and protein from his spoon food. Yet. Our plan is to alternate Jack's formula bottles with soy milk, thickened, of course, and I started that tonight. He gobbled his first serving of soy milk down like it was pure ambrosia. Do I have to be 70 years old to say things like "pure ambrosia?" cuz I just did. I'm just sayin'... Anyway, Dr Elaine has finally given her blessings on Sonia feeding Jack spoon food independently. And today she did, and she reports he did really well. Since Jack goes back to the pedi in a month, we're going to proceed with our plan and if he doesn't hold his weight and loses any, we'll go back to formula and continue advancing his spoon feeding. Dr Elaine will continue to monitor Sonia's skill at spoon feeding and Jack's willingness to eat. So far, Jack hasn't given her any of the Today I like this but tomorrow I won't, I'll eat all of this cold, some of that warm, none of this at all, and I'll pretend to eat this no matter what temperature you offer it to me and then I'll pocket it all in my adorable little cheeks and give it all back to you all at all once just when you think I've swallowed that last spoonful business that he's given both myself and Dr Elaine.

Sounds like a pretty good plan, right? Here's the hitch. Now that Jack is pending approval for an LVN to care for him, everything that occurs with him, to him, about him, on him, or even thought about anywhere near him has to approved by his doctor, right down to the Desitin smeared upon his little bum, OTC, prn, and all the requisite lingo that goes into a proper order. So if the doctor approves an order for Desitin and I run out and proffer A&D, the LVN cannot apply it to his little cheeks. Same with our plans to alternate soy milk with formula. And you already know how many rounds I've already gone with this doctor. So, wish me luck!

Sunday, February 20, 2011

Jack's Been Up To No Good!

First he figured out how to expand his horizons with a trip down the hall......to pick out a movie...

After that he ventured into the kitchen all the way on the other side of the house...

...to see what mischief he could find...
...under the table...
And this is his newest trick...
...and he's tickled pink to have outgrown his cradle...
...can you see how pleased he is with himself?
And his new kneeling skills have led to this...
...time to teach him how to fold!
And teach him to stay out of the CD's...

...and to NOT pull on the telephone cord... ...cuz it only leads to this...
It didn't actually fall on him...but the loud noise when it crashed convinced him that he was dreadfully injured.
Of course there's always room to explore under the coffee table...

...and what would the day be without kneeling at the step stool?

That top left tooth I spotted the other night is here to stay...not the here now, gone tomorrow second bottom tooth that's been playing shy for months now. So, Jack-Snack officially has four teeth! The top two look to be like normally shaped teeth. The bottom right tooth has finally made it's debut permanent, and it's every bit as unique as it's neighbor, a sharp spikey pointed fang. That the bottom teeth are spikey is no longer much of a wrench to the head. I'm over it. He's my little Jack, and his teeth are spikey.

Friday was his 15 month well baby check. And a new diagnosis of asthma. So he has yet another inhaler, this one an inhaled steroid called Q-Var, 1 puff every morning and one puff every night. Dang. Jack weighed in at 20 pounds and 14 ounces. He is 28 inches long! His head circumference is 45 cm. He's still wearing a size 4 diaper and his crawling skills are getting more uniform...not quite a genuine crawl, but the boy gets where he wants to go, all the same! And Saturday I bought him 7 new sleep and play outfits...size 6-9 months. He's barely hanging onto the regular growth charts at the 1st percentile for height, but he's moved up 2 points and is in the 5th percentile for weight! You go baby! I love you so much it hurts, but in a good way!

Post Script: I also discovered late after this post that Jack has the outer point of a molar poked through his top right gums, way in the back, but I was too lazy to get up and update the post. He's had wide mushy back gums, top and bottom, for about two weeks now, so I wasn't really surprised to find that little point sticking out. It was still poked out when I got home from work tonight, so I guess it's officially a new tooth coming in!

Tattoo ~ Part Two

Okay, so it's really part three, but I didn't show you anything until the first two steps were done...and Tattoo Part Two rhymes, so we're going with that. I have to say, we stopped early. It was significantly more painful than I remembered, so I turned into a baby midway through the moon and when the artist said, "You might want to consider doing this as a two step like before. Come back for the Faerie later," I immediately said Yes, let's do that! So...come back in three weeks to see the Faerie. Also, before you see the pictures, keep in mind that the inflamed areas under each of the little white stars doesn't show in the pictures...it looks very much in real life life I've got festering pimples on my arm. Or Leprosy. And that really kinda cracks me up! And the outline of the moon still contains a bit of the purple transfer ink...so the lines will be finer as it heals. And the moon itself still has quite a bit of blood in the ink, so the white is pinkish bloody and the blue looks kinda green. I'll update as I heal.

Here it is!


Thursday, February 17, 2011

Trouble's a'Brewin'

The Wabiest of Wabies made it all the way down the hall to The Middle Little's room tonight. Thank goodness and all that is chocolate that The Middle was sound asleep!

Monday, February 14, 2011

Hurting...

I'm danged tired starting my third week at this new job. I haven't settled my feelings about what I've been allowed to see this last week enough to talk about it. The immediate things that come to mind are a two year old angel of a girl who won't live to see three, and an eleven year old with liver cancer that I drew blood from today. Yeah, it's been kinda rough. Duh! What was I thinking? Sure I thought I'd have other babies with Ds like Willie, and I do, but where were my ears when my brain was screaming that these kids are sick and some will die? I guess I was still living in the honeymoon of Down syndrome because Willie is just so perfect and precious and good. But Willie is healthy. These kids are not. And it really, really sucks and it hurts quite a bit more than just a little.

I haven't blogged because I've been trying to soak up my kids while I am home. I am seriously rethinking my decision to work days. How do you busy day working Moms do it? Not liking this being away all day one bit. And all Willie wants to do when I get home is scratch and pinch the crap out of my face. He thinks it's very funny to draw blood from my cheeks while wearing a big goofy grin. It seems to be a mix of "I'm really happy you're home but now I'm going to make you suffer for leaving me." I'll post pictures when my heart isn't so low. Thanks for listening. Truly.

Saturday, February 12, 2011

Something To Blog About

Irony. It's a funny thing. Alanis Morisette wrote a song about it. Not that I'm a huge fan of hers, but she does make a point.

Mr. Play It Safe was afraid to fly
He packed his suitcase and kissed his kids goodbye
He waited his whole damn life to take that flight
And as the plane crashed down he thought
"Well isn't this nice..."
~jagged little pill album

And so it is purely ironic in the wry satire that is my life, with me being an admittedly proud speed demon, that the only accident I've ever had took place at speeds too low to register on the speedometer. Yep. Today. In a parking lot. Right smack dab up against an innocuous parked car. I'd underestimated the space I had to turn into a slot and scraped another car.

I reversed away from the car I'd just rolled into and parked next to it. I was thinking a foot long dent and maybe some scrapes. Dollar signs were ringing in my head. Increased insurance premiums. How many points is that on my DMV? I got out to survey the damage. Scratched up the rear fender, the rear panel and the driver's side door. The three people who saw the whole action were watching me to see if I'd jump into the van to flee. I'm sure they saw my face go white when I looked at the car's license plate to note the fresh off the lot plastic placards where a license plate should be. And then my eyes travelled upward to see the shiny silvery emblem of the car's maker and I just about peed myself. Couldn't slide into a shot out run down Pinto (are there still any Pintos on the road?) No, I had to do it big and disfigure a Mercedes Benz. Crap!

But wait...It gets better!

I was standing in my open door trying to decide how best to locate the car's owner. I turned toward my van to open Willie's door while I instructed The Middle the open his door to get some air, and what do I see? A head and shoulders disappearing into the smashed car's driver seat. The owner had come back and had absently gotten into his car and started it, rolled down the window and put the car in gear. Why, oh why could I have not displayed some of the slow witted sluggish thought processes that I've had for two weeks while I've learned my new job? Why?

I called out to him from the open door, "Dude! I just hit your car." Stupid, stupid, stupid. He was going to drive away. He hadn't seen the damage. I was off the hook. As far as anyone was privy to, except for now of course, The Middle, my pristine accident free driving record could remain unchallenged. The whole driver returning thing happened so fast, if I'd delayed turning around for even 30 seconds to tell The Middle to open his door for air, the driver would have driven away and I would have missed the whole confession. But I hadn't delayed. And it was the right thing to do. Crap!

The guy was actually pretty cool. And he let me know that the car wasn't brand new. It was a 2002. A cop buddy of his had put the dealer placards on his car because he was getting pulled over at least once every three days. "They see a black man driving a Mercedes and think it's stolen." I don't get that logic. I actually wanted to ask him So how is a black man driving a brand new Mercedes different? But he volunteered, "I guess they think it would be harder to steal it from a dealership than off the streets."

While we were in the process of gathering insurance information he said "Oh, this has to be private. I've already got a few points and I have a new insurance agency. Let's handle this privately. Private would be best." He wouldn't even take my info. We exchanged names and phone numbers. He said he has friends who do auto body work and will get a cheap estimate. He said that since there weren't any actual dents, it would mean a sand and buff and a new coat of paint. Whew!

While this post was supposed to be about surviving my first two weeks at my new job, it is this instead. More later when I find out how much this will cost. Oh yeah. And still more when The Beloved sees the nice basketball sized dent in my front bumper.

Monday, February 7, 2011

I'm Old!

Today is your birthday...
Da-da-da-da-da-da-da-da...
Today is your birthday...
Da-da-da-da-da-da-da-da...
Well, it's my birthday too, yeah!

I don't remember who wrote this silly little diddy!

Thursday, February 3, 2011

Sweet Lois Has Her Wings


This little one and her family have fought so hard, but Lois left this earth for Heaven this morning at home in her sleep. Please visit her family here and lend some words of comfort.

My heart breaks for her family. Selfishly, I am scared silly for Jack. As well as all the other babies and their families that I've come to know and truly love through the Down syndrome community. I'm saying special prayers for all of us tonight. We are a family now, connected though an extra chromosome. When one of us hurts or loses one of our babies, we all bleed. Please pray for the family who are missing their little Butter Bean.

I know My Beloved will ask why I'm sad. And I won't tell him. Because he will just ask gently, "Baby, why do you torture yourself? Why do you read these things? It kills you every time." And when I finally do tell him he will say, "Stop reading about these things. It tears you up thinking about it. It's not going to happen to our baby. It won't. It won't!" But that won't lend comfort. And I know why. Because Lois was one of ours. One of our own. And I'm scared to death that one day it will be My Sweet Jack's pictures plastered all over the world wide web asking for prayers for him. I am scared. Terrified. More so than when we got Jack's prenatal diagnosis. But I'm also thanking God tonight for my Ds community. My Ds family. And for all of our babies with Ds.

Tuesday, February 1, 2011

Well Then!

Day two of my new job is completed. It's going well. The bonus is that when I got home, Jack was so happy to see me that he started signing "Mommy" the proper way...up at his chin instead of whacking his splayed hand rapidly against his chest. As always, whether he's beating on his chest or this evening when he used proper form, an excited "Mama! Mama! Mamamamama!" accompanied the activity. It's almost worth leaving him to see how happy he is when I come home. Almost. Not entirely quite worth missing my Little Love.

Thursday, January 27, 2011

Holy Cow!

I almost forgot...last night while I was tucking Willie into bed he bit my finger...with a top tooth! It's the top right tooth and the top left looks ready to pop out any minute! And...he's getting those legs in on the crawling action! It's not consistent, but he's moving those legs!

I Can't Drive 55

Remember those bumper stickers that were popular when some idiot decided that reducing freeway speeds to 55 would save lives? It was a huge fail. Huge. But that's where I'll be during orientation next week. Only our freeways are 65 mph. And I won't even be doing that because I'll be in the morning commute. And the luxury of driving in the car pool lane while I work nights? Won't happen. I have to be to work by the time I am legally allowed to drive in the car pool lane with no one else in the car. Dang!

The new job is promising. I start Monday, full time. The position of Clinical Nurse Supervisor will pay well enough on it's own. I'll also be doing case management and home visits, for even higher per-visit pay. The thing is, I hate traffic.

I mean I really hate traffic. I don't drive the speed limit unless there's a cop on my butt or the kids are in the car. Even then I push it just a little bit. I know every curve in my route and I know where new lanes are coming up. I know where traffic typically slows and I know how to watch all lanes to see who's moving and who's lallygagging. I keep an acute eye on the motorcycles and I know who's coming up fast behind me. The Beloved would beg to differ, but I am a safe driver. Case in point: At the high point in elevation here there is an overpass where CHP's can hide unseen and then swoop down on unsuspecting drivers. And two miles past this point one day, I saw the pretty flashing blue and red lights in my rear view, coming up fast. Behind me. Crap. So I pull over.

First thing the Chippy says is "That's some fancy driving. Where'd you learn to drive like that?" Ummmm...my mom? No, I didn't say that, nor did I tell him the truth. I said that I was on call at so-and-so hospital, flashed my badge at him, and said that there was a trauma waiting in the ER, that's why I was in such a hurry, I'm sorry, I'll slow down. I'll never forget what came next. He said, verbatim, "You sure were in a hurry. I clocked you at 92 and by the time I caught you, you were going 98!" and then "I won't keep you though. You obviously know how to drive. Just get there safely." What the heck? He didn't even ask for my license. And he also didn't ask for my license the next 6 times he pulled me over. Typically, cops don't ticket nurses. They just don't. It's some unwritten rule and I routinely abuse it to the point of obscenity. The next six times he pulled me over it was to chat. Where was I headed that night? Did I know what kind of patients I was getting? Were the 12 hour shifts difficult? Blah, blah blah. He never kept me long, but neither did he ticket me. The last time he pulled me over he'd said that he'd seen me the previous night, but didn't pull me over because I'd been driving the speed limit and he thought that maybe I didn't have time to chat that night. He seemed sad. And I never saw him again after that. I've seen the new guy who sticks out so far on the over pass that the oncoming traffic lights make his light bar glow for all to see for a mile in either direction. I'm glad he's not pulling me over anymore. It was kinda creepy. He could have hauled me in for reckless driving at any one of those stops and impounded my vehicle to boot. Where ever he is, I wish him well, and I eat a doughnut in his honor every time I eat doughnuts.

So where did I learn to drive? From a bank robber. True story. I was 15 and his name was Billy. Ironic, huh? Billy the kid?! At the ripe old age of 34, Billy had already served four terms in the federal penitentiaries of various states for armed bank robbery. Yeah, apparently, federal crimes don't carry the sentences they used to. And that was in 1980! Anyway, Billy took me under his wing when he caught me driving my Youngest Older Brother's bright yellow cop-magnet Ford Bronco, and doing a very poor job of it. He found me at a gas station with utterly zero knowledge of just how to get the gas from the nozzle into the truck. So I had three times a week driving lessons from Billy the bank robber. Wonder if he ever gave up armed robbery for a living? I don't know...haven't seen him in years.

My first education about cars and driving started when I was just 3 years old. My youngest oldest brother was 11. This is where I learned to duck and weave, how to spot an opening and how to "trend" drivers. Skills I use today. Why my Mother let him drive at 11 is beyond me. Likely she didn't know he was driving, or that he owned several cars. It's also more likely that she knew about it and was just too tired to fight him over it. My three older brothers were hellions. Well, maybe not the Middle One, but the Youngest and Oldest to be sure. The Youngest dreamed up crap to pull and the Oldest went along with it. Ironically, he's the one who always got caught, whined that it was the Youngest's idea, got his punishment and then more punishment for going along with the Youngest's stupidity, punishment for not knowing better, punishment for going along with it yet again, etc. The Youngest simply denied having any knowledge of the kerfuffle. Only the Oldest never stopped getting caught, and never stopped going along with the Youngest's shenanigans. He never stopped whining about it either. Back in the day, getting caught driving under aged and without a license earned you a trip to the police station and a call home. As long as he didn't get caught, she didn't have to know about it. And he very seldom got caught, because he had me riding shot gun. He taught me how to spot cops and paid me a dollar for each one I saw. The bonus was five dollars if I saw the cop before he did. By the time I was five, he was paying me so much that he had to modify his reward policy. I got five bucks regardless of my performance for every time we arrived home without having been pulled over. By then he had a license and a long ugly reputation for out running cops. Remember this was back in the day. They didn't have helicopters and if you could pull into your driveway before you were pulled over you were home free. That law has changed.

Another true story, involving The Youngest and The Middle Older Bothers. Yes, I said bothers! They were walking home from school way back in the 60's when RTD buses still rumbled and spewed horrid toxic black fumes. There was one such bus pulled over at a curb while the driver used a pay-phone. They were 12 and 14 at the time ~ certainly old enough to know better, but still young and foolish enough to do it anyway. They hopped on the bus full of afternoon commuters and drove it several miles until they found a spot big enough to park it. Then they put it in park, turned off the key and hopped off. They also should have known better than to congratulate each other while my Mom watched the evening news. I'm just sayin'...

So my driving skills were honed by two criminals. One a fairly successful bank robber, if you knew his ratio of get-aways to getting-caughts. The other my beloved Youngest Older Brother, who was in his own echelon, a terribly successful career criminal. Who is now dead.

Dang, I hope my kids grow up having zero interesting stories to tell about their own childhoods.

Tomorrow we can drive around this town
and let the cops chase us around...
If you don't expect too much from me
you might not be let down...
~The Gin Blossoms
~New Miserable Experience

My Life Sucks...

...or so I should be led to believe. I went to my new job this morning to sign more papers...more on that in a while. To get there I had to drive through what once was the ritzy area, the Hollywood of the North end of LA County, the Bel-Air of our little hovel. When I was leaving there was a bus in front of me, one of those rapid transit things. On the back of the bus was the city's name splashed in bright colors, with the caption beneath "...Where the good life leads to!" So, clearly, my life is not good because I don't live there. Who woulda thunk it? My quality of life, my goodness, is now determined by my zip code. And the pisser here is that this city is no longer the end all and be all that they once were, and I seriously have some grave doubts about the worthiness of people's lives who do live there. I mean really, I've lived where I have for over 20 years, and in those 20 years, I have had people from this community really and truly, literally, say in all belief that they are better people because they live there.

I don't get it. Driving through their streets is scenic and green, and they are clean and well maintained. So are the streets in my neighborhood. There is a big police presence, just like where I live. There are thriving businesses and there are kids out playing on the sidewalks, just like where I live. And I'm pretty certain that their property values plummeted just like ours.

And if they're all so special, how come there was a rapid transit bus. Don't they all have hummers, beamers and lexus's-s-s-s-s? I went to a Whole Foods to buy Willie a nutritional supplement. I've never seen so many hybrids outside of a car lot. And Whole Foods? Cha-ching! But I like their politics, so I spent my money. Besides, they are the only game in town to find this particular supplement. More on the job in a later post.

Monday, January 24, 2011

Just When You Thought You'd Heard It All...

I don't even know how to start this post. So I'll just say it. In the kinda near future, The Dear Daddy and I will be throwing our hats into the adoption ring. Yes, you read right. Pick yourself up off the floor now.

I'd love to say that we'll be adopting from the UK. We won't. We cannot afford it for one, and we would not pass the stringent requirements placed on prospective adoptive parents by a country that pretty much throws these babies and children away. How sick is that? It breaks my heart that I can't save a baby or child from an institution, but there it is.

What we can do is domestic adoption. It's more affordable for one. Our chances of adopting a baby are greater for another. And the kicker is, with babies with Down syndrome, there are much less demands about home size, family income, parental age, etc. So we're in. And it makes my heart absolutely giddy with delight.

When Jack was born the tragedy of how many babies are aborted because of a prenatal diagnosis really struck me harder than it did while I still carried him within me. Learning later that only about 25% of babies with a chromosomal difference survive to be born had me holding his sleeping little self and thanking my God in Heaven that he made it. My heart hurt that he could have died in utero. And finally, I'd heard about Reece's Rainbow, but actually going there and seeing all of those beautiful and worthy babies and children just made my heart ache. Why can't we have one...or four? Why do they make it so difficult for American families to adopt them and love them? Why do they send them away to mental institutions when they turn 5? It kills me. Why not have a Turning 5 Clearance and let all the families who want these children come and get them? It makes no sense and it makes me nuts that I can't do anything about it.

But I can do something here at home. I've long told My Beloved that if we were younger and more financially secure I'd be all over him to adopt a baby with Down syndrome from the UK. And about two months ago I read about the more lax expense and requirements here in the US. And I told The Beloved, who was at that time, holding a squirming, giggling Jack in his arms. And he asked, "What are you thinking? One of these babies? One of these. right. here?" and buried his mustache into Jack's neck to make him squeal with laughter. When the giggles died down, I asked what he thought. I guess he must have know this was coming eventually. He said simply, "I think we can give another baby a good home."

So we've been talking about it here and there. Always with affirmation, as if it were always a foregone conclusion that we would adopt. We were both terrified while I carried Jack. Terrified of Down syndrome and what it would mean for The Baby and our family. And now I almost think that if I could be guaranteed having another baby with Down syndrome, I'd reverse that tubal ligation. Oh. Wait. Jack's pregnancy was really hard. Really Hard! And I am old. And the tubal ligation I had cannot be reversed.

So that brings me to my next news. I've already posted that I have a new job working with special needs children. The next news is that I will even have a title to go with my new job: Clinical Nurse Supervisor. I'll be in the office two days a week filling that role, as well as making home visits and case managing as well. I'll start next week. I can hardly wait. I'd applied for a part time position but the more they spoke with me the more they want me on board full time. What a huge answer to prayer!

And so I am busily making a mental tally of all the things around this house that we will be able to repair now. The list is long. Long! I am mindful of two personal debts that I haven't been able to repay. I will love to cross those off the list in my heart! There are things for The Littles we haven't been able to buy, a swing set to replace our dilapidated one being high on the list! And now, quite possibly, an overhaul on the nursery to accommodate another crib. Not that Jack has actually ever spent one night in his crib yet. I know. We're working on it. The Beloved says, "In the spring we'll move him to his own room." I know he likes Jack nearby where he can hear his snuffles in his sleep, but also, it makes it really easy for The Dear Daddy to scoop him up and nestle him between us. He's a changed man. I have to say, in complete honesty, neither of The Olders were allowed to family bed. Ever. If they wound up there after The Beloved went to work, so be it. But Jack has spent more nights nestled between us, at The Beloved's suggestion, than he has in his cradle three feet away. And now we're talking about adopting a baby like Jack.

So please be prayerful on our behalf.

Friday, January 21, 2011

YJBYC C!

Okay, that's an acronym for the post You Just Broke Your Child. Congratulations! I hope Single Dad Laughing didn't find out about my swiping his title to use on my own post about his post. He might be annoyed. Or maybe he won't be, because this post is a follow up and posting about it in the first place is an accountability tool for me.

So here's the follow up. It's been about two weeks since I wrote CONGRATULATIONS on a Post-it and stuck it to my computer monitor, right in the way of the browser window and back/forward buttons. You know, where I have to actually see it and look around it to do what I want, but not where it will just fade and become part of the monitor. I posted it up there on a Friday night when all The Littles were in bed. When The Olders arose Saturday morning I explained the new rules, mostly for benefit of The Middle, but also so that The Oldest could follow suit. I chose our biggest problem areas that usually lead to yelling and decided to stick to these few for now:

::There will be no yelling. None.
::Things that used to incite yelling will now be spoken calmly.
::There will be no yelling.
::Yellers will go to their rooms, repeatedly if need be, until all yelling stops.
::There will be no yelling.
::Directives will be issued twice. Calmly. After that, the person involved will be sent to their room or to a time out and the directive will either be completed or the person will remain in time out until it is.
::There will be no yelling.
::Lengthy or repeated trips to their rooms or time outs will be accompanied by progressive loss of privileges.
::There will be no yelling.
::When a directive is issued, it will NOT be accompanied by any grumbling, grousing, complaining, dirty looks, faces made behind backs, outright argument, or shuffling of feet in hopes that I will forget the directive.
::There will be no yelling.
::In any instance where corporal punishment is required, it will be delivered quietly and swiftly and the Offender will then either go to their room or be in a time out until compliance with behavior is achieved.
::There will be no yelling.
::When a sibling has a complaint about another sibling, the complaint will be outlined quietly and calmly. The Defendant will have his or her say without being interrupted by the Accuser. All decisions of The Judges shall be final and will be complied with without grumbling, grousing, complaining, dirty looks, faces made behind the Judges back or outright arguing, or shuffling of feet in hopes that I will forget about the aforementioned decision. And finally:
::There will be no yelling. None.

Yes, I realize the dramatic speech and the choice of vocabulary would be well above the heads of the typical 8 and soon-to-be 12 year olds. Not my kids. They are far from typical. Midway through the lecture The Girlie had zoned out. I knew she would. But she's not the challenging child! I saw it coming. She asked to be excused. No, you may not be excused! "I get it Mom, No yelling." All the same, sit! As for The Middle, in case it hasn't been made abundantly, profoundly, crystal-clear before this post, he thrives on drama. One sure way to lose him somewhere in the middle is to treat him like he's typical. Give him some flair, some drama, some fancy vocabulary sprinkled throughout the speech, preferably with some arm waving and gestures and
lots of voice fluctuations and he's all ears! He got it. Then I lowered the boom...

...The Big, Big Rule...

::There will be no crying, screaming, screeching, squeaking, or any other sort of high pitched, mind numbing, fingernails on a chalkboard utterances of any kind. None. Zero. Zilch. This is the ace in the hole The Middle pulls out when he's losing his grip, an argument, leverage, control, the upper hand in negotiations, when a toy frustrates him, when a noise sounds, when a breeze blows through, when the phone rings, or simply because it's Tuesday for crying out loud! It makes me crazy. I could honestly take all of the other quirky behaviors My Middle could throw at me with a smile on my face, but that ability of his to hit notes that make dogs a block away howl just undoes me. Every time. And he knows it.

So he pulled it out first thing this morning. It broke me. I yelled. So I sat him down and said, I broke the no yelling rule. I will go to my room as soon as you're on the bus. It's not okay for me to break the rules either. Do you like how things have been going with the no yelling rule? He nods. Because I sometimes get the idea that you're trying to push me to my limits to get me to yell. Is that true? He nods, requisite guilty head tilt, looking at his shoes. Do you know why you do that? Thinks for a minute, finally, "I don't know. I do like it better when it's loud though." Okay. Well, I want you to think about it for a while after school today. Sometime you might push someone to their limit sometime and they won't yell at you. Instead they might hurt you. The no yelling rule is still in place. Go get your hair and teeth brushed. We'll talk about this after school today.

I feel like a turd that I broke the rules. They've been breaking the rules steadily for two weeks, and it's been a trying time keeping the calm, with all the constant being on guard to remind them of the rules, stepping in before the yelling starts, being mindful not to yell myself. It's been better around here since the rule of no yelling, but still, it's been trying. And really, the parent isn't supposed to break the rules! And of course I knew that once the new rules were in place, The Middle was going to step up his game to break me. At least it took two weeks! The former me would have been broken in two hours. The me before Jack. Jack who really has nothing to do with all the yelling. How does that little bitty extra chromosome work such magic? Maybe it's not for me to know. At any rate, there's now an addendum to The Rules:

::If at any time, in the almighty wisdom of The Judges, it is determined that The Yeller was adequately provoked into yelling, both the one who yelled and the one who provoked the yelling will suffer loss of a privilege. To this The Girlie said, "Finally! It will finally be fair now!" while shooting a meaningful look at her brother. And The Middle, well, he said under his breath, and I quote, "Stupid addendum!"

There have been many, many times that both teachers, class room aides, the gals from the ART, and in particular, various principals at The Middle's schools, even his psychiatrist for crying out loud, one time even a lady standing behind us in line at Wal-Mart have questioned my choice of vocabulary when speaking to my kids. In general, when Mommy pulls out the Grown Up Words, they know to pay attention, it's going to be serious. They know this. They do! Nothing gets a kids' attention like a change in the surrounding atmosphere. Just to be sure, after a few minutes had settled on the "Stupid addendum" remark, I asked The Middle what addendum means. "Mom, you don't have to ask me this. I KNOW what it means." Tell me please. "Mom. Trust me," hands out front, flat and wide, patting the air motion, "you don't have to ask me this!" Humor me. Heavy sigh from him. "Are you really gonna make me do this? Don't you trust me to know what a word means when you've already used it, like, A THOUSAND times already?" Just tell me what it means. "Mom, I really don't know why you're doing this. I really don't want to do this. I wish you'd just drop it already. You already know what it means, I already know what it means. Just drop it! Get on with your life already!" This from my 8 year old. By now I'm enjoying his antics and keep pressing. Just tell me what it means and then you can on with your life, already! "Mom! It's a simple word. YOU KNOW THIS. I know you do," complete with eyebrow raising and expansive hand waving, "Think about the word. A-den-dum," three chops to a flat hand with the horizontal other hand for each syllable, "You're adding something. Putting in more, adding to a list, if you will. Can I go now?" Gotta love that kid! But yeah, he gets it!

Our challenge for today: figuring out how The Middle can get an adequate dose of daily loudness for 30 minutes each day without driving me completely out of my tree. The solution: I'm going to enlist the services of my very old iPod, the also rather old but still awesome Bose docking station with way cool loud speakers that I can hear clearly all the way across the house locked in my bathroom with all doors in between closed and barricaded, and a rock band with suitably questionable lyrics for minor children from my expansive music library. Who knows, maybe he'll choose Mozart! It's a solution we can all live with, as long as The Dear Daddy doesn't come home in the middle of it, and I'm pretty danged sure which band he will choose! The Middle will be allowed the volume he chooses (It will be loud!) and he can dance, twirl, jump around and holler all he wants for 30 full minutes while he wails on his air guitar and beats the crap out of imaginary drums. All you Good Mothers out there ~ this is your cue to shudder and turn away in revulsion. And thank your lucky stars that we are not your neighbors!

Thursday, January 20, 2011

Spoiled or Sick?

The Beloved says that Jack is getting spoiled. I beg to differ. It's true that every one in the household pays attention to him, and it's also true that for five, soon to be six, hours each week, people come to see him and spend all of their time playing with and paying attention to him. And each of the ladies that come to see The Olders every day also pay attention to him.

If he were getting spoiled I think I'd see a lot of him getting fussy when I put him down to play. I'd see the crinkle face and hear the screams of protest when I take away something he shouldn't have, when the dog walks away from him, when a toy rolls away from him, when a favorite activity stops, when I walk away from him to leave the room, or when I put him in his cradle to sleep. I think if he were getting spoiled, I'd see quite a bit of crankiness unless things are going exactly as he wants them.

Oh. Wait. He is doing all of that stuff!

But he's also been running a low grade fever, the highest being 99.1, and everything that comes near goes right into his mouth. Especially soft things like spitty cloths, fabric toys, his clothing, everyone else's clothing, pillows from the couch, The Middle's discarded socks, chewy things like bottle nipples and pacifiers, any finger he can grab and shove into his mouth before the finger's owner realizes there's a tooth about to pierce their flesh, Princess's tail, purse straps, power cords, shoes, the edge of the carpet, doggy toys, and pretty much any thing else classified as off limits. Nothing is safe from his mouth.

So tonight I stripped him down and popped a frozen strawberry into the new mesh feeder I bought for him and put him in his high chair. I put the feeder into his mouth and he immediately made a monster face and gave a whole body shudder. He didn't like the cold. He banged the mesh bag and the strawberry around on the tray and in general had a ball leaving little pink smears every where as the strawberry softened. I was folding laundry and every few minutes I'd try to entice him into putting the bag back into his mouth. He stopped shuddering but was no happier to chew on it. Once the strawberry was no longer frozen but still cold, he gobbled it all up and started sucking on the bag to get more juice. And he was much happier! Of course, the wet wash cloth I wiped him up with...right into his mouth! He's busily chewing on it as if it were a juicy premium cut of beef and he a starving baby who hasn't eaten in days.

So The Dear Daddy had better stop telling lies about My Baby, or his juicy premium cuts of beef are going to be replaced with a wet wash cloth!

Thursday, January 13, 2011

Well, Alrighty Then...

So maybe I WON'T staple his sleeper to the carpet and zip him up in it, or duct tape him to the tile floor to keep him from crawling...because this morning, My Sweet Duck crawled over to me, saying "Mama! Mama! Mamamamama!"

Wednesday, January 12, 2011

There He Goes...

Even if I'm not ready for it, Jack scooted across the floor about a million times for Laurie from the Junior Blind this afternoon. Jack's OT and PT cannot get him to do things no matter how they try. Jack has been sitting unsupported on the soft couch for at least a month now for Laurie, and will sit unsupported on the floor for Anna from EI, for brief periods. Today Anna had him "putting in" at least a dozen times this morning, something that has him arching his back and squeaking and pulling his hand away when Beth tries to get him to "put in." Laurie was here this afternoon, and Jack reached right "in" to a container a dozen or more times to retrieve a toy, again something that has him arching and squeaking and requires much patient coaching when Beth tries to get him to do it. Both Beth from OT and Jean from PT walk in the door and Jack puts on his "not gonna do it" face. He seems to really like both Beth and Jean, and he gets happy when they arrive and is full of smiles, but he knows that they work him and make him move his body in certain ways that he would rather not. There's a clear mischievousness to the glint in his eyes and a firm resolve in his chubby cheeks when he works with them. Truly, there seems to be a challenge issued anew with every visit, "Okay ladies, who's going to win today, me or you?" and the challenge is on. Today with Laurie the toy placed 2' away had him scooting on his belly army style until he could grab it! And he did it over and over again. None of the flattening out and rolling away like when Jean tries to get him to scoot. None of the arm flailing and threats to cry. None of it. Just scooting merrily toward the toy. Dang it all! And as for the pivoting that Jean has put heroic efforts into getting him to accomplish? He pivoted a full 360* for Laurie today, twice left and then a full circle right! I'd just gotten over my struggles with the clear fact that Jack would not be walking by his first birthday. Then it slowly sunk in just how wonderful it will be that Jack will be a baby longer. And so I started to really be fine with his delays. Took me long enough, huh? And then he did all those "skills and abilities" today. From the action he's showing with his legs, Laurie gives him about a week before he's doing a formal crawl. I have to agree. Danged kid! I am super proud of him, and it made my little heart swell with joy that he succeeded, but now that he's shown that he can do it, he needs to stop! Because I want him to stay my baby longer. Sniffle...

Tuesday, January 11, 2011

You Just Broke Your Child. Congratulations!

This isn't an easy post to write. For so many reasons. But it's been bugging me, so I'll write about it. I found this post from Single Dad Laughing to be very, very disturbing. For a variety of reasons. I won't enumerate them. Just suffice to say that I read his very impassioned post several days ago, and it's still with me, still just really bugging me. That's the title of his post, and I copied it for mine.

I'd like to see what happened in the lives of that father and child directly before the scene in Costco. I'd dearly love to see what happened in their lives after they left the store. I cannot stress enough that there is nothing, n-o-t-h-i-n-g that the child could have done to deserve the treatment he was given, but I'd still like a little insight as to what came before. I'm hoping in my heart of hearts that while the father's behavior was extreme, it was just the steam blowing off that allowed him to not lash out and strike the child with the anger behind his words. I hope against hope that the writer of the post embellished his story just a little. I'm hoping that the dad took the child with a gentle hand by the shoulders while leaving Costco to keep him nearby and safe crossing the parking lot. I'm hoping that once buckled in, the dad said to the child, "I'm sorry I spoke to you that way. I was really angry and frustrated, but that doesn't make it okay to treat you like that. I'm really sorry. Can you forgive me?"

Sometimes parents get fed up. Sometimes children are difficult in the extreme. Sometimes parents in a snapshot of time are ill equipped to deal with it. Sometimes children push our buttons to the breaking point. Sometimes, the public has the front row seat.

Again, I am not trying to excuse the father's actions or angry words. But I have a Prest-O-Quick-O change artist myself. He's a tyrannical venomous little viper one moment, spewing bile every where, on every one and every thing, and the next moment he is timid and reclusive, the horns have retracted and the fangs have receded. The moments after a monumental melt down are just as likely to hold a kiss and hug from him as they are to announce he's going outside to play. Or to reveal the tension around his eyes, the pull at his mouth, and the first squeaky high pitched utterances that herald he's winding up for yet another Mt. Saint Helen's sized eruption. You just never know what you're going to get with him until it happens. I've been in the car with him, banging my head against the steering wheel to save banging his head against something. I've stood the physical barrier between him and The Oldest when she's determined to take his head off. He's a tough kid. She's a soft marshmallow. He moves her to violence in two point five seconds flat. He knows how to push the buttons of saints. I swear that God would cuss sometimes. But hey, God's only Son was Jesus, and He was perfect. God never had to put up with calls from Jesus' school saying to come get him NOW before they called the authorities. God never got a call from Jesus' first grade principal saying to come get him, that Jesus' teacher was leaving school to go to urgent care for injuries sustained from Jesus. Am I right? Sometimes, I think God could use a refresher course on really tough kids...maybe make us parents who love them a little thicker skinned, longer fused, slower angering, better equipped, more creative, more patient. The child maybe just a little less extreme. Then again, The Middle's tenacity will serve him well as an adult if he chooses to use it in the right direction.

During any given trek across the parking lot, my thoughts still muddled from banging my head against the steering wheel, he clings to my protective hand and transforms himself into the cherubic angel, looking like nothing more than a very well behaved child. You see, parking lots, and precious few other things, are his kryptonite. Once inside the store, safely away from the dangerous pit falls of the parking lot, he's just as likely to revert back to the whirling over stimulated dervish. Or not. Trouble is, the mom or dad, once inside the store, having had a full day of this prest-o-change-o crap, is still charged to full steam. The pressure doesn't ease just because Houdini has suddenly changed faces for the umpteenth time that hour! The on again, off again, rise to the challenge only to have to rise again seconds later, the volume of the inevitable blow up equal only in how minuscule the stimulus was, the relief when the crisis resolves, and then - oh! Wait! Charge up again, new crisis on the horizon! Whoooaaaa...hold onto to your hats, folks! It's gonna be a big one! Sometimes the escape valve on moms and dads get stuck. Sometimes it leaks out in angry words that hurt and mame tender souls. Sometimes, the public has a front row seat.

Some parents live in a constant state of hyper-drive. Constant. Even at rest. Have you ever been awakened at say, 2:38 am to hysterical and terrified panic filled screaming from your child's room, certain that Freddie Kruger is coming through the broken window with a 3' knife dripping with blood...only to arrive in the doorway to realize the child has not been beset by rabid dogs, he's just pissed! "I just woke up and realized that I forgot to eat dessert last night, and YOU didn't remind me!" Yeah, try getting that kid back to sleep for school in the morning! And should I even send him to school that day? Will my coffee even get cold before the school is calling? And even without the middle of the night tantrums, and sometimes genuine night terrors, parents of some kids don't rest. They sleep from sheer mental exhaustion, but they don't rest. Because tomorrow is coming. It's out there. And who really knows what it's going to hold? Is going to be a marathon of counting to ten or is it going to be "a good day" with few melt downs. Sometimes "good days" are measured by their simple lack of conflict. Happily, most of our good days now are simply that, really good days. Good not because they were not bad, just simply good because they were good. Sometimes parents wear down. And sometimes, the public has a front row seat.

Anyway...the point is that Single Dad Laughing's post resonated for me. How often does the volume in our home escalate? How often do frustrations turn into angry yelling? How often do disagreements between The Olders result in slapping at each other? Nasty names being thrown at each other? Promises to play or loan a toy being retracted in anger? How many times have I blown my cool and yelled? This house is loud. It's a simple fact. Kids playing, TV's blaring, noisy play, the dishwasher running, the phone ringing, mechanical toys buzzing, short fuses...there are a million reasons why voices get raised. Sometimes it's the only way to be heard. Frequently the buzz around this house is energetic and upbeat and has nothing to do with frustrations, but it's still loud. And the sixth request to take out the garbage is not going to be delivered with the same charm and easy tone the first request was made with.

So no, I am not that dad from Costco. There have been many, many times I've felt like him though, on the inside. Sometimes the front row seat that the public gets to see is of a tense Mom trying to keep The Middle within arms' reach instead of rooting through someone else's shopping cart, divulging every intimate detail of our lives to other shoppers waiting in line, or walking away with a stranger. Sometimes the Mom had just endured the fifteen minute ride to the store amidst howling, screeching and gnashing of teeth, because quite simply, Woody's hat fell down into the foot well where The Middle cannot get it until we arrive at the store and he can safely unbuckle to retrieve it. And that happened in the first two minutes of the trip. Pull over to the curb? Let the child retrieve the toy and proceed in relative calm to the store? Yeah right. ASD comes with an entire set of rules, written in a language entirely foreign to me, but that clearly state the The Middle shall not, under any circumstances, unbuckle the seat belt until he has arrived safely at his destination. It's simply not done. Ever. And there's my very personal favorite, seeing The Middle frustrated and just about to pop his cork and trying very hard to contain him and keep the lid on him, until we can complete even a brief shopping trip, wait in line, pay and get back out to the van where he can explode in relative safety. Yes, I know, I've heard it before, but seriously, if I have to leave the store every time this happens, every shopping trip will take 6 hours to complete and I will never get anything done. And he simply must learn how to control himself in public. How else is he going to do that except out in public? So yes, please do save that oh so helpful tip about leaving him at home with a sitter for someone brand spanking new to this life of high needs children who might actually believe that works!

And the author...he made some really exceptional points about how to nurture a child. About why it's so very important to nurture a child. About how really very easy it can be to nurture a child. No one sets out on this life called parenting with the aim of hurting our children. No one gets up each day and says, "Let's see what I can do to make my kid miserable today." But I'd also like him to see the other picture once or twice. I hope and believe that the really tough kid is the exception and not the rule. Sometimes the fact that the dad has not hit is commendable. Sometimes that the dad has not said more was an act that required all of his reserves. Sometimes, the fact that a parent has maintained their composure for the last five minutes when they are bursting at the seams, is a heroic measure. Because sometimes, some kids are really tough. And sometimes, the public gets a front row seat without having seen behind the scenes.

And the point in this post is not to exonerate the Costco dad. I'm trying to work out just exactly why Single Dad Laughing's post has rankled my feathers. And for all I know, the Costco dad really is just a big stupid jackass who should not have had kids. The point is that Single Dad Laughing wrote a post that has changed how I parent. There's a sticky note on my computer monitor now with one simple word. This place in our home is where the day either starts out rocky or sets sail for a smooth voyage. The alarm goes off and I start by getting The Girlie awake. Next I head to The Middle Little's room, and yes I am happy to see his face when he rolls his sleepy self over to look at me. He sees a pleasant smile and hears a pleasant wake up greeting. And he either stumbles out of bed and says "Okay, Mom" or ten minutes and ten more wake up calls later, I am bellering at him from the living room to get up. Now! Because by that time, that's where I am, getting breakfast set out, morning meds dispensed, packing lunches, getting breakfast ready for Jack, making sure backpacks and homework are ready to go and shoes lined up for little feet. He'll either bring his sleepy self out to start getting his shoes and socks on, or he'll emerge red faced and pissed off, already snarling, grunting, growling and grousing under his breath that he had to get up. You just never know. But the note is there, where I am likely to see it by that point, sitting in the chair by my computer monitor feeding Jack. A simple reminder. A simple statement. A simple pat on the back. A simple challenge to rise to the occasion and do better. A simple, quiet round of applause, that today, I will not start the day with My Middle Little being yelled at. Even when he clearly wants to yell at me first thing in the morning. He's a tough kid. And I love him.

And it's all up from there. Of course I want all of my children to feel bigger than anything life throws at them. But I have to admit, when it comes to The Middle Little, my concern about this is greater than with the other two, even Jack. He's a tender soul. I want to protect this narrow window of time while his Daddy and I are still everything to him. The Post-it note will be a gentle reminder about shaping his future. Because it's so easy to forget. It's so easy to say that things will be better tomorrow, next week, when his meds are adjusted again, when he's older, when he's matured a little more, when he has better control over his actions, over his words, over his abilities, over his impulses...but really, the time is now.

So I hope I haven't painted a bleak ugly picture of what our home life is. The difficult times are at long last the exception to the rule. There are daily blow ups to be sure, often more than ten in a day, while Our Middle figures out how to function in life with success. There are also plenty of times full of cuddles, of play, of kisses delivered in passing, of a hand reaching out to ruffle a Little head, of silly questions and sillier answers. Of silly stories with silly conclusions. Of serious questions from serious little boys who want, and get, serious answers. Of family movies where we all pile up on one couch with blankets and pillows and a huge dog or two thrown into the mix for good measure. There is singing in our home on a daily basis, almost always from The Middle Little, either songs he knows or is making up on the spot. There is coloring and drawing and cartoons and Lego building. There is laughter and banter and good times that I hope all of Our Littles will remember while they grow.

So...the Post-it note is there. Congratulations. Today I am not going to break my child!

Post Script: If you must, if you have misread the intention of this post, feel free to write me a comment to shred me. I am not defending the Costco dad. Bad parents are bad parents are bad parents...I've gotten to the end of this post no closer to knowing why Single Dad Laughing's post has rankled me so. But there it is. It's moved me to parent better myself, because sometimes that front row view the public has can serve as a mirror. I'm just sayin'...